• From: Warminster PA
  • Registered: Mon, 10 Jan 2011
  • Posts: 67

Topic: Met with the Dr...

who will be injecting the radioactive beads into me. He came across as competent but not arrogant. If I'm accepted into the study (still waiting on test results and I still have to get a CT scan) he'll do two takes. The first is a trial run and the second is the real thing.

This is the chemo drug I'll be taking:

http://www.rxlist.com/xeloda-drug.htm

If all goes well, the trial run will be on either April 1 or 4 and the actual procedure on April 14.

I saw a scan from my January MRI. No wonder I have pain. Two of the liver tumors are huge and press against my abdomen. I saw a lot of little tumors too.

  • Registered: Sun, 01 Aug 2010
  • Posts: 493

Re: Met with the Dr...

Looking forward to the best results for you. Keep us posted.

  • Lainy
  • Lainy
  • Moderator
  • Offline
  • From: Phoenix AZ
  • Registered: Fri, 13 Jan 2006
  • Posts: 8,215

Re: Met with the Dr...

Joolz, best of luck on your big rehearsal the beginning of April. April means Spring and Spring means new beginnings and that is what I am hoping for you!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • Registered: Fri, 12 May 2006
  • Posts: 8,165

Re: Met with the Dr...

Joolz....good luck and regarding Xeloda it is a drug commonly used for this cancer.  You know how to find previous postings?  Go to top, google function, type in Xeloda....and voila, tons of postings will appear. 
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

5 Reply by jathy1125 (edited by jathy1125 Tue, 15 Mar 2011 07:11:00)

  • Registered: Thu, 09 Sep 2010
  • Posts: 533

Re: Met with the Dr...

Joolz- I took Xeloda for 5 months while waiting for transplant. I took 8 pills twice a day can't remember mg. I had no major side effects.  Drug company nurse called once a week to check on me.Good luck.
Lots of prayers-Cathy

  • From: Warminster PA
  • Registered: Mon, 10 Jan 2011
  • Posts: 67

Re: Met with the Dr...

marions wrote:

Joolz....good luck and regarding Xeloda it is a drug commonly used for this cancer.  You know how to find previous postings?  Go to top, google function, type in Xeloda....and voila, tons of postings will appear. 
All my best wishes,
Marion

I looked it up on the Net and found a lot of information already. I keep forgetting this board has a search function!

  • From: Warminster PA
  • Registered: Mon, 10 Jan 2011
  • Posts: 67

Re: Met with the Dr...

Lainy wrote:

Joolz, best of luck on your big rehearsal the beginning of April. April means Spring and Spring means new beginnings and that is what I am hoping for you!

Yep. Spring is for all new things.

  • From: Warminster PA
  • Registered: Mon, 10 Jan 2011
  • Posts: 67

Re: Met with the Dr...

Had to drink barium for tomorrow's CT scan. Yuck. There's more for tomorrow.

  • Registered: Fri, 12 May 2006
  • Posts: 8,165

Re: Met with the Dr...

Joolz...Ugghh...I hear you.  Unfortunately, barium has never been touted to be of culinary value.  Looking at the positive though, your next meal will be a most pleasurable experience.   
Good luck, tomorrow.  You are more than halfway there.
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER
  • Registered: Sun, 14 Nov 2010
  • Posts: 295

Re: Met with the Dr...

Joolz - Double ugghhhh!!!

Mother of John who lost his battle on Oct. 9, 2009 at age 30....
  • From: Warminster PA
  • Registered: Mon, 10 Jan 2011
  • Posts: 67

Re: Met with the Dr...

If anyone can change the formula for barium and make it palatable, they'd make a mint.

So the CT scan was done today. No biggie except for the barium. I imagine I'll hear results from this and my blood tests in a few days.

  • Registered: Fri, 12 May 2006
  • Posts: 8,165

Re: Met with the Dr...

Joolz....Ha, let's work on it; a super yummy barium. 
My fingers are crossed for a super CT result.
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER
  • From: Warminster PA
  • Registered: Mon, 10 Jan 2011
  • Posts: 67

Re: Met with the Dr...

If this is a harbinger of how things are going to go... the Study Coordinator called me today and said she can't get my CT results because they weren't ordered by an on-staff physician. Oh, I said, it was most certainly was!


Am I just being silly? Is this just a fluke or the way things are going to be?

  • Lainy
  • Lainy
  • Moderator
  • Offline
  • From: Phoenix AZ
  • Registered: Fri, 13 Jan 2006
  • Posts: 8,215

Re: Met with the Dr...

Joolz, sadly its the way so much rolls today. No one wants to do their job and service is out the window! I think a lot of office staff no longer feels pride in what they do. It's a good thing we know how to tell them!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • Registered: Fri, 12 May 2006
  • Posts: 8,165

Re: Met with the Dr...

Jooolz...No, you are not silly.  Unfortunately mistakes do happen.  Stay on top of things and possibly have someone assist you with this.  Take notes of all conversations, the date, the name of the person and phone numbers.
Be prepared to encounter similar occasions.
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER