Hi, Pat ,
You are a strong and determined woman that can make such a difficult decision of choosing NO treatment. I am a patient of this disease too, I fully understand ,as a patient myself, what all those thoughts going through my mind night after night trying to make choices of when to treat with what and when not to treat with that; I am sure the same apply to you when making such a hard decision.But I always thank our LORD giving me choices rather than none.
On the other hand, I hope ,besides chemotherapy consultation with University of Chicago, have you asked them to review your case by the multidisciplinary team that beside chemotherapy, involved interventional radiologist (IR) to look at your case? Or can you try one more time and select a big hospital or Northwestern university in Chicago to get a 2nd opinion on IR.
The reason I say that is,IR treatment(RFA,microwave ablation,chemoembo and radioembolization ,nanoknife) are relatively new,save and easy to take and much less side effects to have. I did microwave ablation ,cryoablation and PEI for liver mass and Lymph Node and experience no side effects afterwards. Even adverse reaction(side effects) is different from patient to patient, but IR procedures are among the easier and most tolerable procedures.I suggest you take a look into IR to see what IR treatments can help you.
I am talking about IR and NOT SBRT or IMRT or other forms of internal or external radiation treatment; those radiation treatment do have side effects that I don't want you or me to have.
My point is that if you exhaust all treatment options and not just chemotherapy; then you will at peace with yourself and your love ones when the final decision are made; may be you have done so but I did not notice you had mentioned on all your previous messages. From a patient like me to a patient like you, I admire your courage and wisdom in handling your disease.
Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.