• Registered: Fri, 12 May 2006
  • Posts: 8,164

Topic: Bile Duct Cancer Walk, Montain View, California

On Saturday I met up with the folks at the annual Bile Duct Cancer Walk, in Mountain, View, California.

Danny Cmiel, then a 4th grader initiated the idea of a bile duct cancer walk for a school project.  It has grown tremendously with upcoming consecutive walks in numerous US locations.  Well done, Denny, you are an inspiration.  Denny graciously allowed me to take his picture which I hope to be able to post.  (Of course, I need Rick

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  • Lainy
  • Lainy
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  • From: Phoenix AZ
  • Registered: Fri, 13 Jan 2006
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Re: Bile Duct Cancer Walk, Montain View, California

Marion, how fantastic!!! Thanks for the Barbara report. I hope that means she is doing so much better. She had not posted in a great while and of course one assumes the worse, guess we shouldn't do that! They are such lovely people, really enjoyed them. It sounds like it was a very successful event and you are so right about meeting up with people from the CC site. Don't know if you saw but 32Coupe (Bob and Donna) came for a visit yesterday. It is a feeling beyond compare!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • Registered: Fri, 12 May 2006
  • Posts: 8,164

Re: Bile Duct Cancer Walk, Montain View, California

Yes, Lainy...I did read your posting and am thrilled for you to have reconnected with Bob and Donna.  Bob had e-mailed me personally therefore, I had been aware of his recent circumstances.  I believe for Bob to have been diagnosed with this disease more than 11 years ago....what a success story he is!
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER
  • Registered: Sun, 01 Aug 2010
  • Posts: 493

Re: Bile Duct Cancer Walk, Montain View, California

I am looking forward to posting the CC walk that my daughter's employer is sponsoring in June. I will get the details to you. The more we can raise awareness, the better our chances for getting research, money, and a cure. smile

  • barb
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  • Registered: Sat, 14 Jul 2007
  • Posts: 85

Re: Bile Duct Cancer Walk, Montain View, California

hi marion, and a very belated thank you for being at the walk.  hi to lainy too.

it was pure joy to meet you marion.   what a beautiful place to have that event take place.  booth (my husband) and i loved being there and meeting others who are joined together in fighting this wicked disease.  everyone that we talked to was warm and caring.  a very special time for us.

on the way home we visited with one of my brothers who was vacationing in montecito with his wife and his mother-in-law.  his father-in-law passed away in feb from pancreatic cancer. 

marion, i hope to get my act together in a week or two and post my survivor story.  we've been consumed by family problems since our return and i am in survival mode.  however, i know how much i appreciated reading other long term survivor stories so i will deliver :-).

thank you again marion and to the board and other volunteers for all you do.

with love,
barb h

lainy, i finally viewed your youtube posting... i am so sorry... hospice those people should not be working in those positions.  as you know there are some good hospices and obviously that one is a farce.   thank you for speaking up.

  • Registered: Fri, 12 May 2006
  • Posts: 8,164

Re: Bile Duct Cancer Walk, Montain View, California

Dear Barb.....Sure wish that we had more time to talk.....but, please take care of yourself.  The survivor story can wait.   
I will be mailing you a letter real soon.
Hugs and best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER
  • Registered: Fri, 12 May 2006
  • Posts: 8,164

Re: Bile Duct Cancer Walk, Montain View, California

Susan....Is this the bile duct cancer walk organized by the very same organization putting on the event Barb and I had attended?  If not please, let me know.  I won't be able to be there however, I would like for someone to distribute some brochures and display a Cholangiocarcinoma Foundation banner.  If Joyce is organizing this event then I will get in touch with her also.
Best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER