Topic: Sharing Our Story
I've read many posts and I've decided I want to share our story. My husband is 37 years old. We've been together 7 years and we have been very happy. He's my best friend I can't imagine life without with. Or I guess I should say I can and it looks very lonely and bleak.
My husband was diagnosed at the end of May 07 with non-resectable stage 4 cancer. It came as a major shock for us. He'd been having pain since January but he has Ulcerative Colitis and the Dr's don't really get upset when you have pain because he always has chronic pain. Anyway in May it started to get so bad that he'd be writhing in pain at night and vomiting. Finally they discovered he had Sclerosing Cholangitis and put in a stent. Then that got infected a week later and they did another ERCP and then they decided he was at risk for Cholangiocarcinoma. The Dr's decided to do the Whipple but discovered that the cancer had already spread to far. They did a gastic bypass and closed him up. Since then he has tried palliative chemo and stopped. He has also has 4 more ERCP's. Right now I'm waiting for the surgeon to look at his Ultrasound and phone us to let us know if he can have another. It's so hard to wait for the phone call.
It's hard to watch him get weaker and weaker. It's hard to watch him be in so much pain. He's not really able to leave the house. He's not able to eat very much. We have a six month old baby. She was born a month before the diagnosis and I'm so sad that he's not going to get to watch her grow up. I'm sad that he can't hold her but I'm glad that he can still smile at her. There's so much more to say but maybe that's enough for now.
I enjoy reading the posts on this website because it makes me feel less alone. I'm sorry that all of you are going through something similar.