1 (edited by marions Tue, 07 Jun 2011 21:15:59)

Topic: A few more thoughts

Considering that just as recently as three years ago very little research has gone into this cancer I must say....we have come a long way.  And, I must emphasize that our little community (The Cholangiocarcinoma Foundation, comprised of members in the US and worldwide) has been an intricate part of this welcome development.  But, we have a long way to go. Together we must propel furthering research of this cancer.  Pardon for borrowing the expression from someone famous:

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Re: A few more thoughts

Marion you are something else. I say we should have you run on the Cholangio ticket for the next Presidential Election! I would be your manager. There I go again trying to control things! You are one gutsy little broad and I say that with much affection! That is a nickname my BFF gave me and I gladly share it with you!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: A few more thoughts

Marion - thank you for such a truly inspiring post.  I hate my reason for having heard of cc, but I'm so immensely proud to be part of this amazing group of people.

Lainy - "gutsy little broad" - big_smile.  I love it!!  [What does BFF stand for?  I'm not good with these acronyms]

“When it is dark enough, you can see the stars." - Ralph Waldo Emerson

Re: A few more thoughts

Julia....BFF   Best Female Friend!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: A few more thoughts

I am wiping my brows.  Did not know what is stands for either but, am relieved to know.
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

6 (edited by marions Wed, 08 Jun 2011 00:23:42)

Re: A few more thoughts

And I must add our Dawn (newly elected vice-president) who's expertise has in marketing has changed our world.  And, of course our dear Rick.  The Cholangiocarcinoma website is much admired for its content and overall layout.  (I don't think he ever sleeps) and, of course our Sara a.k. president of The Cholangiocarcinoma Foundation who, ever so efficiently gives direction to this organization.   
Sorry for the add-on but, I barely caught the plane.
Love to each and everyone.
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: A few more thoughts

Marions,  A big thank you to you and all those you mentioned above. The drive, determination, knowledge and support by all of you is appreciated more than you will ever know.
Oh and BFF is also best friends forever (so the kids at high school tell me).
Hugs. Nancy

Loving my husband from afar.

Re: A few more thoughts

Marion- you do inspire me.

Is there anyone in the SF Bay Area that would like to brain-storm with me to organize a Walk?   Perhaps a Dog Walk / Parade at Point Iasabel ?

Lesley

Re: A few more thoughts

Lesley.... I can borrow my son's dog.  Count me in on the walk and hopefully some others will help with the brainstorming.
All my best,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: A few more thoughts

Ive been looking for a reason to take my mom to California.   Let me know the date of walk when it is decided.  Now Im thinking we definitely need a walk in Chicago as well.  Ill get a hold of Patty, Im certain she would help me figuire out how to get it going...
Barbara

The  Lord is my shephard

Re: A few more thoughts

Barbara, you better make a stop in Phoenix on your way to California!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: A few more thoughts

Barbara....Patty, Stella, and you can do it.  I can guarantee this to be the most entertaining walk yet.  You all are soooooo much fun to be around.
Everyone should have the opportunity to experience this.
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: A few more thoughts

I agree!  I love meeting up with my cholangio family.  I know many loved ones from above are very happy we have found eachother.  Marion, Im serious about coming to California this summer and Lainy, we would love to stop to see you and Robin.  I dont go on the site like I used to, maybe because its 2 years that my dad passed, and Im still just so sad...but I get updates daily from my mom, and I feel very connected to this little "club" that unfortunately keeps growing..
  Maybe, I can get Patty to come along, but at the very least her and I want to take a ride to see Darla.
Thanks for everything Marion, my mom really, really enjoyed her experience and is so glad she did something to help.                                             
xoxo
Barbara

The  Lord is my shephard

Re: A few more thoughts

And, she did a wonderful job. 
Thanks and hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER