Topic: my mother has cc

Hello! My name is Linda. I live in Colorado.  My mom was diagnosis with CC on September 5. She'll be 82 in December.  She originally was diagnosis with Gall Bladder problems.  The doctors here did 2 CAT scans and found couple lesions on her liver besides the tumor on her bile duct.  They have said that there is nothing that they can do for her now.  Just to take it a day at a time.  I know that I will be using this site alot. 

Linda

Re: my mother has cc

Hello, Linda!  Welcome to the site.  We're glad you found us, but wish you didn't have a reason to find us. 

Has your mom sought a second opinion?

30-something caregiver

Re: my mother has cc

the doctor she saw for this sent the results to her primary doctor and the doctor she had for her breast cancer 2 years ago.  And another doctor at the hospital.  I've been looking in to maybe talking her in to going down to Arizona to the Mayo Clinic there to see what they say.

Linda

4 (edited by marions Sun, 04 Nov 2007 12:19:35)

Re: my mother has cc

Linda,
you might  want to read the Stoufer blog as Caroline also lives in Colorado.  It could possibly save you some trips out of state. 
Also, in many instances copies of her medical records, Ct scans, physicians report etc.,
will be sufficient for second, third or more opinions. 
Wishing for the best
Marions

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: my mother has cc

Hi Sara and Marions,
     I went to the Mayo site and printed out alot of info for my mom.  She is thinking of asking her doctor to send them the Scans and the other info they have on her.  I'm hoping that they can do something. But with her going on 82 it's hard to say if they will. All my friends from work praying for her. It's just so hard for me being the only one of her kids that is doing anything for her. I have a brother that lives near by, but he really doesn't do anything, and then rest of the family is 4 hours away, and I know that they can't really do anything.  Her primary doctor does have a nurse going to her house weekly to check on her. And then I either go over every day or call if I can't make it. 

Linda

6 (edited by marions Wed, 07 Nov 2007 00:36:03)

Re: my mother has cc

Linda,

Are you in touch with your mom

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: my mother has cc

Hi Marions,
    I do go to her doctor appointments with her.  The last one she had all they did was draw blood.  Haven't heard how it turned out yet.  I'll ask her doctor the next time she goes in.  It seems like most of my family members are leaving it to me to do all the work.  I am glad that hospice helps to look after my mom. With me working full time (late swing shift 3:15-11:15) some times it is hard for me.  But at least I can make sure every thing is okay with her during the day before I go to work.  I'll see how the doctor reacts to my asking him to send the information to the Mayo Clinic. I am glad that I found this board.  It has helped me some so far. 

May the good sprits watch over us.....
Linda

Re: my mother has cc

Linda,
Hoping for you to have a clearer picture after the doctor's visit tomorrow.
Marions

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: my mother has cc

Just wanted you all to know that my moms doctors have deceided not to do anything because of her age.  Also she doesn't want to go through any of the treatments. They said with her being 81 (going on 82) that it would be to hard on her. So we are taking it one day at a time. She will be 82 on December 6th. She has her good days where she feels fine, and then there are days where she is in pain.  Right now she takes Tylenol, both the regular strength and the extra strength. Which one she takes depends on how much pain she is in.  At least she does have my brother checking in on her now too. So it has helped me, I'm not so stressed with being the only one taking care of her. She does not have any swelling of her legs or feet yet, so I'm happy about that.  It's just the pain around her liver and gall bladder that is bugging her right now.

10 (edited by marions Wed, 14 Nov 2007 18:18:28)

Re: my mother has cc

Linda,
Glad to hear your brother relieving you of some stress by visiting your mom.
Tylenol worked great for us.  At times, when needed, we used other pain medication, also.
By using the 1-10 method (1 being the most comfortable) we were able to keep things under control. It sounds, as if you are a great team supporting your Mom; the physician, the daily visit of the nurse, you and your brother.
Wishing the very best for your Mom

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: my mother has cc

Well, my mom had a bad week last week.  Ended up going to the hospital early Saturday morning. She was having the chills and dry heaves, and being very weak.  Ended up having an infection of the bladder and urinary track. She is doing much better. They have her on IV antibiotics. She is supposed to be getting out either Tuesday or Wednesday. So she will be home for Thanksgiving. We are going to have her at our house that day.  We are just taking it one day at a time.  I had almost forgetten that her dad and mom had died in November.  My grand dad had died when I was about 13 years old (around '74) and my grand ma died back in '94.  She reminded me about that on Friday.


Linda

12 (edited by marions Mon, 19 Nov 2007 18:19:39)

Re: my mother has cc

Linda,
great to hear about your Mom's positive response to the IV antibiotics. 
Hoping for Mom to be home with you real soon. Her Birthday is not too far off, also.
Marions

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER