Topic: Photodynamic Therapy
My husband was diagnosed with cc in November.. Early scans suggested that the tumour was confined to the bile duct and the decision was taken to resect. Unfortunately during the op it became apparent that there had been a spread to the omentum. Liver, lungs, gall bladder and pancreas are all apparently unaffected.
My husband returned home mid Dec and since then we have been concentrating on building up his strength. Now he has good appetitie and energy, although he is very thin.
He has had no chemo and the proposed next stage treatment is PDT with Photofrin. Does anyone have any experience of this? I know that it is non invasive and has few side effects. A clinical trial was terminated because those having the PDT did so much better than the control group, it was considered unethical to withhold the treatment from them. http://www.nice.org.uk/page.aspx?o=212231
Here is the UK there is also PDT treatment with Photoflora - billed as new generation PDT. There are no clinical trials as yet but I wonder if anyone out there knows anything more. The claim is that it can treat deeper tumours and the side effects of photsensitivity last for 3-4 days as opposed to 30 plus days. http://www.homeonthewww.com/xytos/biotech_how.htm
What about complementary treatments? my husband is taking anti oxidants, Co-enzyme 10, IP6 and AHCC.
I think this site excellent and my congratulations to the people who assembled it.
Well done also the the McCrea family for your drugs summaries. I would be very interested to hear what results you have with Avestin.
Patricia London England