Topic: My trip to Mayo
Hello everyone. For those of you who don't know me, I am a 31yo female who has intrahepatic cholangiocarcinoma. I received a liver resection in May at University of Pittsburgh. They removed the whole tumor, one margin was close at 2mm and I had negative lymph nodes. I received 3 cycles of Gemzar/Cisplatin at Oregon Health and Science. (I live in Oregon) And the next step is to start 6 wks of chemo radiation with Xeloda. It seems adjuvant therapy is debated in a case like mine so off I went to Mayo for some words of wisdom. I'm not really sure what I was expecting there ( a magic wand perhaps) I met with a medical oncologist and they agreed with the Gem/Cis combo, said it is the combo that has at least shown some success in treating CC. They called a radiation oncologist also and said they are not typically recommending adjuvant radiation for a R0 resection but understood why OHSU recommended it and did not disagree with proceeding. They also said OHSU is a good place to get radiation. So that's it. I went to OHSU today and got mapped for radiation.
Just my observation, Mayo is the most organized medical center I have ever seen! I had my records and scans sent there prior to going and they were able to recite my medical history just as well as I can. It was super impressive. Also, there was no rushing at all. Both the nurse practitioner and oncologist sat and spoke with me for an hour, with no attempt to leave whatsoever. I actually had to dismiss them! I have never been treated so well and I wish all centers would practice this way.
So, that's that. I hope this post is helpful to someone. Take care and best wishes!