Topic: Staring a new clinical trial..HELP
Hello to all those battling cancer out there
This is not my first visit to these discussion boards, but this is my very first post and way of reaching out. In February of this year, my mother, was diagnosed with Stage IV Metatsatic Liver cancer (primary unknown). After rounds of tests, bloodwork and the beginning of treatments, we have finally been able to focus in on the true primary, which has been determind to be bile ducts (or as you all know, Cholangiocarcinoma). It has been a difficult diagnosis to swallow, but my mother has remained adamant in her fight and we continue to stand by her...as we will not give up.
I am reaching out to those fighting this disease, whether you are fighting it yourself, or fighting it along with your family members with this disease. We have had many ups and downs along this road, and have recently been faced with yet another bump in our road.
My mothers first treatment began just weeks after being diagnosed with rounds of chemo every 3 weeks, of Taxol and Carboplatin. We followed her progress with CT scans after every 3rd treamtent, and initially were pleasantly surprised to find some shinkage and progess. As time progressed and chemo treaments moved on however, we were soon faced with a little disappointment to find the chemo treament had stopped working and a few spots had come back.
And so a new path began, mom had a port placed and began new chemotherapy treaments, with Gemzar and Oxalitplatin. And as before, we have just recently checked her progress with another CT scan.
Unfortunately this new chemotherapy is not taking charge, and some spots have again increased in size. While the news is more difficult each time, we again, continue to fight and pray that her doctors know what is best. We are being treated at Mayo hospital in Rochester, and couldn't be more pleased with the care so far. Doctors are recommending starting her on a clinical trial after a couple weeks break from her chemotherapy. And so now the wait begins. The wait for the chemo to get out of her system, and the wait to find out which clinical trial will suit her best to try and kick this thing.
I research daily, ask questions daily, and sometimes I don't know where to turn. Is there anyone out there who can help me learn more about clinical trials that are best for her cancer, or those who have seen success? I don't even know where to begin, but need to do my part.
Thank you all for your time reading my very long post....
A concerned daughter