Topic: Compassionate Allowance/ Social Security

Taken from NORD:
What's Happening at the National Organization of Rare Disease Conference?

Complete List of Compassionate Allowances Conditions
http://www.socialsecurity.gov/compassio … itions.htm


"This year, from 3.2 to 3.3 million people will apply for benefits," Commissioner Astrue said.  "Approximately 150,000 people have received Compassionate Allowances this year, typically receiving disability benefits in two weeks or less."


I am not very familiar with benefits offered by Social Security however, this listing includes liver cancer. 

Does anyone have any information pertaining to qualification of accelerated benefits due to Cholangiocarcinoma?

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Re: Compassionate Allowance/ Social Security

My husband, Gary, received Social Security Disability through the Compassionate Act.  He applied more than a year after his diagnosis and he had been working parttime up to that point.  Because he was no longer able to work, his application was processed immediately, the date of eligibility was determined to be the first visit he ever made to our ER with jaundice.  He was paid retroactively...I believe minus the 5 month required waiting period.  Eventhough his diagnosis was CC it was never questioned that he was included as part of this act (possibly because liver/pancreatic cancers are listed and he had Whipple surgery?).  I believe part of our success with SS was the extremely compassionate gentleman who handled Gary's case.  He went out of his way to advise us and to obtain the information needed from Gary's employer.  I hope this is helpful.

Live each day to the fullest

Re: Compassionate Allowance/ Social Security

As an added note...Gary was only 60 years old when he qualified.

Live each day to the fullest

Re: Compassionate Allowance/ Social Security

I applied for social security disability at our local social security office just a couple of weeks after initial diagnosis of inoperable cc, and was approved in two weeks.  Had to wait 5 months before the first check was issued.

Re: Compassionate Allowance/ Social Security

Thank you Elaine and Kathy....It does not list Cholangiocarcinoma or bile duct cancer.  I assume then for the purpose of qualification for SSI benefits this disease falls under the umbrella of liver cancer. 
All my best to both of you,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Compassionate Allowance/ Social Security

Marion,

I was told my bile duct cancer was on the quick approval list.  That was over two years ago.  You're probably be right.  It's probably listed in the small print under liver cancer.

Kathy

Re: Compassionate Allowance/ Social Security

Kathy....yes intrahepatic CC is included however; I am not sure about extrahepatic bile duct cancer.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Compassionate Allowance/ Social Security

Marion,

I was diagnosed with extrahepatic bile duct cancer, so it seems it has been included all along.

Kathy

Re: Compassionate Allowance/ Social Security

Thanks for sharing this, Kathy.  Is it safe to assume then that the diagnoses of Cholangiocarcinoma fits in the Compassionate Allowances criteria and that those persons are entitled to receive disability benefits in two weeks or less?

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Compassionate Allowance/ Social Security

Marion, this is a question for social security.  All I know for sure is that I was diagnosed with inoperable extrahepatic cholangiocarcinoma in July 09, applied for ss disability in Aug 09  and approved in two weeks.

My eligibility date went back two weeks before formal diagnosis which was the last day I worked at my job.  I had seen my local doctor with complaints of jaundice and itching without a rash but did not have a diagnosis.

At that time it seemed like my last day working was important to social security.  I'm sure they look at each case individually, but those of us with cc get looked at very fast.

Re: Compassionate Allowance/ Social Security

Thanks again, Kathy.  Good to know that CC is given the priority it demands.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Compassionate Allowance/ Social Security

My SSD started 5 months after diagnose. I was diagnosed July 31, 2008. I applied December 2008, approved with in 2 weeks and received my first check Febuary 2009. I made one phone call, filled out an app on line and then did a 45 minute interview on phone (time was prearraigned)!! This is how goverment should be run, so simple and effiecent!! Everyone with CC needs to apply, age makes no difference.
Lots of prayers for all in the battle!-Cathy

Re: Compassionate Allowance/ Social Security

Thanks Cathy...hopefully others will see this posting and act on it.  There is so much at stake.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER