1 (edited by JeffG Mon, 19 Nov 2007 14:21:49)

Topic: Tis the Season to be Jolly or Not ?

I recieved the results of my nuclear bone scan the other day and basically I have signs of mets to my mid cervical spine on the left, L 4-5 Vertebrae, Left SI joint, and the pedicle of T12 on the right side. No change to the 10th rib.  Will be doing MRI to determine extent.  These 4 months without Chemo have been great but while off guard the little gremlins of cancer seeds decided to look for new homes. I won't go in to further detail until My oncologist and I decide what to do next.  From what I understand there is different drugs that are effective in slowing or sometimes stopping bone mets.  I'll check it out after Thankgiving as I have a mission to enjoy my turkey, and fixings, and yes Peter plenty of Gravy.  While I'm here I will share a poem to all memebers if you call it that. Just some thoughts from the heart:


TIS THE SEASON TO BE JOLLY OR NOT ?

FOR SOME....JOLLY IT'S SURELY NOT
FOR SOME....IT'S LAUGHTER AND HOPEFUL THOUGHTS
FOR SOME....IT'S TEARS AND FEARFUL THOUGHTS
FOR SOME....IT'S FIGHTING AND PRAYING QUITE A LOT

MAY WE.... ALL TAKE OUR CARING PART
MAY WE....PRAY FOR LOVED ONES WHO HAD TO DEPART
MAY WE....PRAY FOR CAREGIVERS WHO FEEL LIKE FALLING APART
MAY WE....PRAY AND SEND OUR LOVING AND WISHFUL THOUGHTS

REMEMBER THE....YEARS PAST AND THOSE EVERLASTING SMILES
REMEMBER THE....CHEERS OF LAUGHTER AND ABUNDANCE OF JOY
REMEMBER THE....ETERNAL LOVE THAT WILL ALWAYS BE SHARED
REMEMBER THE....GIFT OF BEING GOD'S CHILDREN EVEN WHEN IN DESPAIR

DURING THANKSGIVING,CHRISTMAS, AND NEW YEARS I'LL CONTINUE TO CARRY A SPECIAL THOUGHT....A MIRACLE FOR ALL AS HOPE IS IN THE AIR IS IT NOT?

WITH GOD'S STRENGTH,LOVE, AND THOUGHT WE'LL DO OUR BEST TO BE JOLLY OR NOT ? 

THE BEST HOLIDAY SEASON POSSIBLE TO YOU ALL !  THE REALITY IS IT WILL COME AND GO WHETHER WE ARE READY OR NOT

God Bless you All !
Jeff G.

Take it to the Limit,One More Time! (Eagles)

Re: Tis the Season to be Jolly or Not ?

Jeff - this is so special; thanks for sharing with all of us.  I know it comes straight from the heart and I do hope your holidays will  be jolly.  When Sam was diagnosed with cc, I asked him why?  His reply -
"Betty, life is what it is.  I have lived a good life".  He was an unbelievably strong person and I think you are too.  Holidays are tough for me but "this too shall pass".  Enjoy lots of gravy!!!
My Best
Betty

Re: Tis the Season to be Jolly or Not ?

Jeff,

Sorry to hear your latest news -- but I know you'll keep persevering.  Keep positive as you always do, and things will get sorted out OK.

Jerry Daniels

Re: Tis the Season to be Jolly or Not ?

Hi Jeff,

I hope you can enjoy your Thanksgiving and keep up your famous positive outlook! They keep throwing you curveballs and so far you've managed to catch them all ( not a baseball fan, so does that analogy work?)

Best of luck to you and Happy Thanksgiving! And thanks for the poem - it means a lot to me, as I'm already in depression over the first holidays without my mother.

Joyce

Re: Tis the Season to be Jolly or Not ?

Jeff,

You are one of the joys of the holiday! 

Stacie

Re: Tis the Season to be Jolly or Not ?

Hi Jeff -- You are one special guy!!! I loved your poem and know that it came right from your heart.
There are many of us who read these posts with hope in our hearts for those who are suffering the anguish connected with this horrible disease. I have lived it and gone through it with my husband who passed away in May,'07. You have been a true fighter and, as another of your faithful "cheerleaders", I'm going to continue with my positive thoughts and prayers for you -- my favorite saying (as someone else also mentioned) -- THIS TOO SHALL PASS!!! Have a wonderful Thanksgiving, Jeff -- I'll be thinking of you as I also will be soaking up lots of gravy with my mashed potatoes and turkey.
     Love and hugs ---  Jean

Re: Tis the Season to be Jolly or Not ?

Dear Jeff,
I can so relate to this poem!!!! I am feeling a little angry right now. Not a good week. I feel ripped off that we as a family did not know until last week what our next game plan would be for dad. We are seeking a second opinion. Got him an appt for UCSF Dec. 10th. Now that we found out, I am unable to fly back to ND to see him for thanksgiving. I live in CA and this is soooo hard. I wish I were closer to him so that he could enjoy my children. This is what the holidays are about. My biggest fear is that he seems to be getting sicker by the day. Who knows what Christmas will bring. It seems as if our lives revolve around trying to figure out what to do next for dad. Not that I mind, but I feel in my heart that sometimes it is better to forget about it and enjoy the moment just being together.
Thanks for the ear,
Lana

Re: Tis the Season to be Jolly or Not ?

Enjoy, Jeff! You deserve it! The only thing I beg my husband to stay away from is cheese, ice cream and fatty sweets. He has the stent clogging problem and those seem to cause trouble. I hope you get your bones mets under control. I'm sure things will be fine. You obviously have had time to rest and heal and thats a good thing! Take care and best wishes for a happy Thanksgiving!! Gain lots of weight!  Mary

Re: Tis the Season to be Jolly or Not ?

Dear Jeff,

I'm sorry to hear about those pesky little ones on your spine. You'll figure out what to do about them later.  I'm glad that  you can  enjoy your Thanksgiving holiday with your family.  I'll  do the same with mine.  Thank-you for your poem and  sharing your bold spirit.

G

Re: Tis the Season to be Jolly or Not ?

Oh Jeff,
I am sure you are going to find a way to make those little "gremlins" pay! Have a wonderfull thanksgiving and we can all eat till it hurts!!! You will of course be in  my prayers. I am always in awe of you and your spirit, no more so than now. For some reason, I imagine you as the general in the cholangiocarcinoma battle army. Always tactical and facing things head on with fierce determination and a generous spirit.....but Thanksgiving is a federal holiday so even the general can take time off! HAve a good break.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Tis the Season to be Jolly or Not ?

As always Jeff, I'm sad to hear bad news, and always I am sending you much love all the way from UK, and I too hope you enjoy your Thanksgiving, with LASHINGS and OODLES of delicious gravy!! Much love to you! xxxxxxxxxxxxx

Re: Tis the Season to be Jolly or Not ?

you'll get past this latest hurdle Jeff and continue to help the rest of us on this web site. In the meantime a lot of us will be sending a prayer your way as we all face our own challenges this Thanksgiving.

Re: Tis the Season to be Jolly or Not ?

Jeff-sorry to hear about the new "gremlins".  Please keep us posted on the plan.  You are our inspiration to keep up the battle.  We surround you with healing energy in our hearts. 
Patrice & Dave

Re: Tis the Season to be Jolly or Not ?

Dear Jeff,

Thank you for the inspirational poem.  You seem like such a strong and special person.  I will keep you in my prayers.
Laura

Re: Tis the Season to be Jolly or Not ?

Hi Jeff,
Hope Thanksgiving was all you hoped for.  Haven't been on in   a few weeks so had a lot of catching up to do.  You are one of our long termers and we are all pulling for you.  You put up a great fight with a great attitude.  We pray for all cc sufferers that new treatments will eradicate this disease.  God Bless you in the coming days and thanks so much for your poem.  My husband Joe was diagnosed in July '06 and is still doing well.  Praise God.  Mary Anne

Re: Tis the Season to be Jolly or Not ?

Jeff, hope you and your family had a great Thanksgiving.  I'm sorry about the pain you've been experiencing in your shoulders and left arm.  I pray for good results tomorrow when you meet with your oncologist.  You have such a positive attitude and keep us all going.

Carol

Re: Tis the Season to be Jolly or Not ?

Jeff,

I have read enough of  your posts to know that you had a special Thanksgiving. Although I lost my Dear Dad within two months of diagnosis, I still hold out hope for others.  For his sake, I hope that others who are battling this illness will conquer it.  My prayers are with you for the best possible outcome.  I pray that the angels who have accompanied you thus far remain your constant companions in continuing to protect you.

Brightest Blessings to  you and your family,

Missing U