Topic: Hi from England
I was browsing the internet today looking for new info on cholangiocarcinoma as it is so much in my mind because it is just coming up to 10 years ago since my husband was diagnosed with this disease ... and I came across this site for the first time.
Alan was 49 and perfectly healthy until feeling he had some sort of gastric bug. Cutting a long story short, within a couple of weeks he had been diagnosed with cholangiocarcinoma and told there was nothing that could be done. Fortunately, within days we found a surgeon who gave us some hope and who was prepared to operate to remove the tumour but, unfortunately it was attached to the portal vein and he couldn't get it all away. Alan then had chemotherapy and radiotherapy and it seemed all was well for a few months, and then it came back ... Two more types of chemo were tried but in the end Alan felt he couldn't take any more and stopped all treatment. He didn't want to see the inside of a hospital ever again, so with great support from our doctor, family and friends, he was able to spend his last three months at home with me and our son, Tom who was 18 at the time.
During the three years Alan was ill we investigated every treatment imaginable, and found there was very little that offered any specific hope. We talked about finding ways of raising money to fund research to hep others who found themselves in our position, but because of the nature of the illness, life soon became too full of just trying to keep things together to do anything about it.
However, after Alan died I decided to do what I could and set up a registered charity here in England, AMMF (The Alan Morement Memorial Fund, registered charity no 1091915) to work towards raising money for research. The charity is small, but we are doing what we can - anyone interested can have a look at the website, www.ammf.org.uk. There are links to helpful sites as well as information on what we do to raise money, and where it goes.
After reading the various posts today, my heart goes out to absolutely everyone who is going through this horrible disease, or is trying to care for someone with it, or who has lost someone to it. Time and again the saying goes through my mind, "why do such bad things happen to good people?"
If there is anyone in the UK (or, of course anywhere else!) who would like to contact me, I can be reached through the website, www.ammf.org.uk.