Topic: Using the forum and family members
I am just wondering if there are many carers and their patents on here. What I mean is it seems like most are one or the other-that if the patient is a member, the carer isnt and vice versa. I am interested what it is like when both parts of the same diagnosis use the forum.
I very much believe that my husband would benefit from this site and posting here. Yet, I am scared to loose that one place of total emotional freedom to stress and worry and vent. Here, I dont have to pretend everything is fine and I can be raw if I need to. However, I feel selfish that Hans has no outlet for his questions and worry and to share his experience in the same way I have.
Can it work? Can both the patient and carer use this forum at the same time? I know that jules and her dad did but are there any others? I want Hans to have the same support I do, but I am selfish enough to want to continue to have here what I have now.
Does anyone have opinions on this or experience?
36 year old patient with buckets of hope