Pancreatitis has been ruled out. 10/12/11 PET/CT scan head to mid thigh showed no lesions at all. CA 19-9 from 10/12 also is now 59, so that is moving in the right direction. Bili numbers still slightly elevated but appear stable for the time being. We will probably go back to quarterly scans and monthly blood tests. Still some mystery, but may take just careful monitoring for the next six to 12 months. I was hoping to start a new thread, i.e. Part 2, but I think I'll wait for the current smoke to clear. At least there doesn't seem to be anything immediately ominous, which I guess is very good.
On a lighter note, my dear onc, Abby Siegel recently adopted a little child, which has been no problem at all for her. My cardiologist, Sun Hi Lee also adopted a little girl, Adela almost 2 years ago. Adela is going through the 'terrible twos' and has been a real challenge. I suggested to Abby that maybe Dr Lee had gotten in the wrong adoption line (i.e. returns). When I saw Dr. Lee the next day, I told what we had concluded, and she had an aha moment and a really good laugh! Life is too short to miss these opportunities!
Hospitals/Doctors Link, Our Experiences: http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126 See page 4 of thread for Dr. Tomoaki Kato info.
Major USA Cancer Centers: http://www.cholangiocarcinoma.org/majorcancercenters.htm