As patients and caregivers ourselves,we need to be HOPEFUL ;we need to be knowledgeable ;we need to be current and we need to be PRACTICAL in search of finding the possible cure for this disease(we don't have one right now).
It is always my belief that at this moment,because of the time frame is relatively short for patients;the best way to help our CURRENT patients is to find and improve the current treatments that work now; research and prepare by choosing the more effective treatments with less adverse reactions for the future in case of the CCA comes back. (recurrence is a fact.)
We should be vigilant and careful about all the info.we read on the internet .We should not have false expectation on treating this disease. One treatment working perfectly for one patient did not mean the same will apply to another patient.
Conventional medical treatments are "evident-based "on research as well as clinical experiences; and I think that is why the oncologist said:
-"Cathy this is so new we have no long term data and even though we believe it was all removed there could be one micro cancer cell lurking, but we believe this is a cure. We need you to keep living to prove us right!!"
And that is how doctors talk to patients; in short,you have to read between the lines."
Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.