Topic: Mark Stephens

On Monday we lost another angel to this disease, our dear Mark Stephens.
http://www.facebook.com/profile.php?id=100000874602637

Mark had the unique ability to touch people’s souls with his kindness, his caring, and his warm demeanor. He was an exceptional person and has left a huge hole in the heart of so many. 

Mark was Executive Vice President, State Government Affairs, National Patient Advocate Foundation, Washington, DC.  Additionally, Mark spent much of his energy in advocating for this disease on behalf of the Cholangiocarcinoma Foundation.

Mark was instrumental in establishing the first Cholangiocarcinoma support group at Emory University Hospital in Atlanta, Georgia.  He presented a webinar on our site: Branching Out: How To Establish a Local Cholangiocarcinoma Support Group
http://www.cholangiocarcinoma.org/localsupportgroup.htm

Rest in peace, dear friend and know that you will be in our hearts forever.

I humbly salute you,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Mark Stephens

I did not have the good fortune to meet Mark but I would like to extend my Sympathies to his Family and Friends.

Those we love must someday pass beyond our present sight…
They leave us and the world we know without their radiant light.
But we know that like a candle their lovely light will shine
To brighten up another place more perfect…more divine.
And in the realm of Heaven where they shine so warm and bright,
Our loved ones live forevermore in God’s eternal light.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Mark Stephens

Dear Marion,

I am sad we lost such a great advocate for CC. I will pray for his family. Thank you Mark for getting the word out about this terrible disease and making a difference. Your voice will be missed but you will never be forgotten. Thank you Marion, for letting us know.

Love, -Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Mark Stephens

I found Mark's posts, his Cholangiocarcinoma Patient Blog & his overwhelming thoughtfulness & generosity of spirit so inspiring.  I will miss him very much & send love & best wishes to his family.

Julia x

"Time may be a great healer, but it's a lousy beautician."

Re: Mark Stephens

This is such sad news about Marks passing, thank you Marion for letting us know. He will be missed by so many and all of his efforts and work will not never forgotten. Thank you Mark for everything and my thoughts are with your family right now.

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.