Topic: Doing well after 2 years!
It's been quite a while since I've posted...I almost feel guilty doing so because I'm doing so well while others are not. But I decided to post a comment to show that there is hope! I had surgery at Mayo in Rochester, MN on 1/5/10 to resect my tumor, which by the way had clean margins. I did not have chemo or radiation because my surgeon felt it would not benefit me and could cause harm. I've gone back to Mayo every 3 to 6 months, and have had a few bumps along the way, but am now mostly feeling like my "old self." I had not seen an oncologist at Mayo, but I requested a referral to Dr. Alberts and saw him 12/11. He assured me that my treatment would not have been different if I'd seen him earlier. I still worry a bit about recurrence, especially before returning to Mayo for my scans and blood work, but I do not let it get in the way of living life. My very best wishes to all of you fighting this horrible illness for yourselves or for loved ones.