Topic: Recent CCC diagnosis
Hi - My name is Jadine and I am from Boulder, CO. I was diagnosed with cholangiocarcinoma last month after three months of vigorous testing. It is a result of a choledochal cyst diagnosed when I was ten years old. (It took 49 years to turn cancerous) I am 59 now. It is not resectable and I was denied a spot in the liver transplant program because of the size of the tumors and because it is stage IV. I have been to the Mayo Clinic for a 2nd opinion which resulted in the same diagnosis plus a suggestion of doing chemoembolization.
I am going to do a Phase I clinical trial with Gemzar, Xeloda and Axitinib and hope for the best. Does anyone have advice on nutrition and a remedy for the itching symptoms??? Thanks - Jadine