Re: Treatment Centers/Physicians

My treatment is mainly at Sloane Kettering in New York City. My surgeon is Dr. Yuman Fong. He took out my gallbladder and cleaned up "stuff" and implanted the liver infusion pump in April 2011. My next surgery is probably mid or end of March 2012.
My main oncologist is Dr. Nancy Kemeny. We've had our share of problems with systemic chemo (can't take the oxaliplatin anymore) and the pump (had 3 embolizations before we could finally use it). Plus blood infections, etc. I haven't had chemo since Nov. 2011 and want 1 or 2 more before my surgery to try to shrink the tumor some more. It was still shrinking as of Dec. 30, 2011 so hopefully it's still getting smaller. I've received the gemcitabine/oxaliplatin cocktail plus FUDR thru the pump.
I also go to Princeton when I don't get chemo in the pump. My oncologist there is Dr. Richard Lee. The oncological staff there has been trained by Dr. Kemeny's staff in the pump and can remove liquids/add saline only. So I only go there when I'm not getting long term maintenance or chemo thru the pump.
My resection is not yet scheduled. I'm hoping for sometime in March. That gives me a bit over a month to prepare for it and get my parents up to PA so they can care for and worry about me up close and personal. I'm praying it's successful!

"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

77 (edited by d517 Sat, 04 Feb 2012 18:07:18)

Re: Treatment Centers/Physicians

My husband had his liver resection at VCU Hospital in Richmond VA.  His Dr's name is Dr. Robert Fisher.  His surgery was on Aug 27th 2010, and he just had his most recent followup in Dec of 2011, and he is still cancer free.  Dr Fisher is a wonderful Dr.  If not for him, I would not have my husband today!  VCU has a Hospitality House for relatives to stay, while their loved ones are in the hospital.  One floor is totally dedicated to transplant families. Transportation to and from the hospital are available too.  They were there for me in every way, and the hospital staff took wonderful care of my husband.  I would recommend this Hospital to anyone suffering from liver disease.    smile

Re: Treatment Centers/Physicians

At times we have requests from our international members to help find a physician in their country. 

Greece:  Dr. Nomikos, MD, FACS, General Surgery, Surgical Oncology:

Argentina:  Dr. Fernando J. Brancato

Philippines: Dr. Josefino C. Qua, MD. FACS, FPCS, FPSO


Re: Treatment Centers/Physicians

My husbands oncologist is Dr. Anthony El-Khouiery at University of Southern California, Norris Cancer Center. He is one of a handful of oncologists whose area of research is CC. He travels the world going to meetings about Hepatobiliary tumors. He is also a really great guy and a straight shooter.

His surgeon was Dr. Yuri Genyk at University of Southern California. This man not only has miraculous hand, he is also a very dedicated doctor. I cannot say enough about what a great job he did in making my husband cancer free. He was in surgery for 17 hours!

Re: Treatment Centers/Physicians

Following up on Amangeloff's post, including those she mentioned, there are a number of other excellent physicians at the University of Southern California who are highly experienced with this disease.

After UCLA had deemed me inoperable and put me on palliative care, we went to Dr. Rick Selby who heads the hepatobiliary surgery and abdominal organ transplant divisions at USC. I came to him very sick. I had an advanced Klatskin tumor, with multiple tumors in the liver, and several large lymphatic masses.  In a first surgery of 12 hours, he did an open cholecystectomy, central liver resection, partial hepatectomy, abdominal lymphadenectomy, and radical bile duct excision with a hepaticojejunostomy. In a second surgery, he did a left hepatic lobe resection. At this point and time, I am tumor free and healthy, something we couldn't imagine six months ago. Needless to say, Dr. Selby is our family hero.

For adjuvant therapy Dr. Selby referred me to Heinz-Josef Lenz, an oncologist at USC. Lenz has been mentioned numerous times on this site as someone with extensive experience with CC who is also on the leading edge of current research. His nurse practitioner, Taline Khoukaz deserves separate mention. She is simply exceptional. I am currently receiving chemotherapy and radiation under their care.

Bottom line: we feel we have been exceedingly well cared for at USC.

Re: Treatment Centers/Physicians

South Korea
National Cancer Center, Korea
Dr. Joong-Won Park

Sees ten thousand CC patients annually


Re: Treatment Centers/Physicians

10,000 cases!!!  Wow.

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Treatment Centers/Physicians

I think I posted on here, but not sure. We have added a few doctors so I think I will post them all again. Such a wonderful facility!!

My daughter, Lauren has CC. She is seen at University of Michigan Hospital.
Her doctors are:

Oncologist- Dr. Mark Zalupski
Surgeon-Dr. Chris Sonnenday
Radiology Oncologist- Dr. Mary Feng
Interventional Radiologist- Dr. Paula Novelli

Lauren has been on chemo since Sept. 2011. She had Theraspheres in May 2012. Feel free to e-mail me and ask any questions you like about the facility, doctors, or procedures.

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Treatment Centers/Physicians

My surgeon was Dr. John Cameron at Johns Hopkins Hospital in Baltimore, Maryland.  Excellent results with my Whipple.  I was out of the hospital in 6 days and on my way home to NY after 4 more days of rest in a hotel.  No drains, tubes or other stuff to deal with.

I'm undergoing chemo and radiation here at home in Rochester, NY through the Lipson Cancer Center at Rochester General Hospital.

Medical oncologist - John Phelan, MD
Radiation Oncologist - Meri Atanas, MD

Great care by very caring people.

Re: Treatment Centers/Physicians

My husband was diagnosed in March 2011.  His liver was resected at Duke by Dr, Bryan Clary.  His Oncologist at Duke is Dr. Herbert Hurwitz.  The Radiologist is Dr. Brian Czito.  The Interventional Radiologist is Dr, Suhocki.  All at Duke have been very caring.  He has received excellent care.  Our local Oncologist in Norfolk Virginia is Dr. Thomas Alberico-- who is wonderful!

Re: Treatment Centers/Physicians

I believe that I have posted here earlier that my brother Bruce, in Pittsburgh PA, has been blessed with the following amazing life-saving doctors:

GP:  Dr. Jim Gleason (found Bruce's cancer initially)
Oncologist:  Dr. Stanley Marks
Surgeon:  Dr. Wallace Marsh

Today, Bruce had the wonderful fortune of meeting with Dr. Weijing Sun at UPMC in Pittsburgh (Dr. Sun was at U. Penn in Philly for 15 years.) - Dr. Sun is a specialist in CC and was able, after meeting with Bruce for several hours, to provide hope and a plan for going forward.

(Again, Bruce was diagnosed 3 years ago with CC and is still fighting the good fight.)

Re: Treatment Centers/Physicians

Patti,wonderful news. My liver surgeon is at The Cleveland Clinic but prior he was head of liver transplant at UPMC. I would love to hear the new plan.
Thanks for sharing this uplifting news.

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Treatment Centers/Physicians

Thanks for the comments, Lainy and Lisa!  Bruce has had a very rough past month...he has been exhausted (could hardly lift his head), had chills, fevers and some pain.  Also, some "distention" in his abdomen.  He has been around the barn with his doctors and in the hospital...everyone looking for an infection and not finding it.  The only news we did come up with was that his hemoglobin levels were low which contributed to the exhaustion.  They did give him a blood transfusion and we added more iron to his diet.  He has also had some reoccurance: (small) tumor in his liver and a lymph node that "looked like it might be cc" so they have been radiating those spots.  Because of low platelets, Bruce has been unable to take chemo (gemzar/cisplatin) which has been excellent at reducing tumors or keeping at bay.  Bruce's CA199 has been around 10-14 for the last several months which is great.  Bruce had his CA199 checked last week (worried, as he has not been on chemo) and it has moved up to 33. is at the high-end of the normal range.

After meeting with Dr. Sun, he informed Bruce that his distention is being caused by low albumen levels which cause fluid to build up in cells.  He wants him to take a protein powder to raise those levels and add more protein to diet.  He also told Bruce that the chills & fever are what he believes to be cholangitis...which we had suspected...but the other doctors had ruled out.  He said that it was hard to diagnose the cholangitis (I believe these are his words) because it was "contained" in the liver.  He wants Bruce to complete the radiation and them will start him on a new chemo regimen...which I will provide more details when I have them.  The best news of the day was that he "had answers" for my brother on why he felt so sick...and my brother sounds like a "new man."  He just needed a good dose of hope and Dr. Sun provided it.  I will write more when I know more.  On with the roller coaster ride...

Love and God bless!

Re: Treatment Centers/Physicians

Just saw this.  Here is my doctor:

Dr. James Abruzzese
Chair, Gastrointerology Oncology
M.D. Anderson Cancer Center
1515 Holcombe
Houston, Texas

He is over the entire department and I knew someone who knew him.  I'm not certain if he always accepts new patients.

Re: Treatment Centers/Physicians

In Australia, my husband has been operated on by two excellent surgeons.


Dr Charles Mosse
Hepatopancreatobiliary, Upper GI and Advanced Laparoscopic Surgeon
Calvary Clinic Specialist Medical Centre / Suite 20
40 Mary Potter Circuit
Bruce ACT 2617
Tel: (02) 6253 4122


Dr Charbel Sandroussi
Upper Gastrointestinal, Hepatobiliary and Transplant Surgeon
100 Carillon Ave, Suite 306 RPAH Medical Centre
Newtown NSW 2042
Tel:  (02) 9565 1375
Operates at RPA and the Mater Hospitals.


Re: Treatment Centers/Physicians

This is my mothers Dr who has successfully treated and operated on my mother since diagnosis in August 2004. 9 Years! I encourage anyone with CC to contact him. He has an excellent bedside manner, works well with the families and his knowledge and talent is truly a God given miracle. He is honest and straight forward and proactive. His team will answer calls and emails day or night.

Dr. Robert Goldstein, MD, F.A.C.S, Baylor University Medical Center, Surgical Director, Pancreas Transplantation
Surgical Director, Living Donor Liver Transplantation
Hepatobiliary Surgery

Following is a plug for the DR -

Dr. Goldstein is a hepatobiliary surgeon and the surgical Director of Pancreas Transplantation and Living Donor Liver Transplantation at Baylor University Medical Center in Dallas. He is board certified in general surgery and critical care medicine.

He currently oversees the Baylor Liver and Pancreas Disease Center offering comprehensive evaluation and treatment for liver tumors, pancreatic tumors and chronic pancreatitis. He has a special interest in bile duct tumors and injuries.

The following treatment options are available to liver and pancreas patients at Baylor University Medical Center and Baylor All Saints Meidcal Center in Fort Worth:

NanoKnife (irreversible Electroporation)
Radiofrequency Thermal Ablation
Advanced Laprascopic Resection
Total Pancreatectomy

Re: Treatment Centers/Physicians

Hi everyone,
any info around San Diego area?  From my research, UCSD Moore cancer center seems like a very good option.. but any specific physicians there or any other centers?

Many thanks,


Re: Treatment Centers/Physicians


Thank you so so much!!!!  I've definiltey seen Dr. Hemming's name in my reserach!

Thank you!!!

Re: Treatment Centers/Physicians


Moore's Cancer Centre is also mentioned here - … rition.htm


Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Treatment Centers/Physicians


Thank you so much!


Re: Treatment Centers/Physicians

My father is being treated at Memorial Sloan Kettering in New York by Dr. Eileen O'Reilly The most caring and professional folks I've ever encountered.

Re: Treatment Centers/Physicians

I wonder if anyone has ever gone through this thread and compiled a list of doctors and treatment centers?  I would be happy to do it as long as people are aware it will take some time to do and in no way is a recommendation of any specific doctor.

Should I go ahead and do it?  Thoughts?


Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Treatment Centers/Physicians

I will add my husbands info--

We are being treated by Dr Sunil Sharma at Huntsman Cancer Institute
Salt Lake City, Utah.

We had a consult with Dr. Jonathan R Whisenant at Intermountain Medical
Center in SLC, UTAH as well.

We liked both Dr's, both had the exact same diagnosis and treatment options.

Not sure if anyone else has added these to your lists~
Hope that helps~


Re: Treatment Centers/Physicians

I also noticed that Huntsman Cancer Institute is not on your "list" of hospitals....

is that because it's not top ranking for this kind of cancer? 

just curious.

It's a pretty top ranking cancer hospital, but possibly not for CC.

Re: Treatment Centers/Physicians

no worries, i wondered if it had anything to do with hospitals that maybe
"specialize" in the kind of cancer more--

If I had any kind of computer skills I would help--or if it's something simple, I could try....

let me know! smile