Topic: It's not a cure, but stable is good.

It has been quite a while since I have posted.  My husband became very sick while on chemotherapy last summer and ended up in the local hospital for ten days. When we followed up with our doctor at MUSC, we found out that a second tumor had appeared since May - while we were on a chemo cycle. All chemotherapy was stopped, and the doctor told us that with the appearance of a second tumor, that we would no longer be considered a candidate for resection, even if the first tumor shrank away from the hepatic artery and the portal vein.

We were fortunate enough to be enrolled in a clinical trial through MUSC: http://prc.hcc.musc.edu/portal/cto/Clin … RAM=PhaseI He was the second to enroll, and he has been taking one pill a day (a sphingolipid compound) since the end of September. He has had two CT scans since then-- one in December and one this week-- both tumors remain unchanged, and no new growths have appeared.

LIke I said in my heading, it isn't a cure, but we can live with this. He has no side-effects from the one-pill dose, and his mood is much better. When he was diagnosed May 25, 2010, he was told he had 1-2 years to live. We were so excited to find out that we are going to beat that prognosis!

For anyone interested...they are now beginning to enroll people for the two-pill-a-day level.

Re: It's not a cure, but stable is good.

WOW, Julieanne this is the best! We love the words stable and no new growth! Wishing and hoping for continued success and please do keep us posted and BTW thanks for the heads up about the 2 pill enrollment.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: It's not a cure, but stable is good.

Hi Julieanne,

Thank you so much for posting and letting us know about your husband. Like Lainy says, stable and no new growths, we love hearing that around here! And also, that is great to hear that your husband is having no side effects from this trial and that his mood has improved also, long may all of that continue. Thanks also for your link on the trial, hopefully that will be of interest and use to others. Thanks again and please continue to let us know how things go for your husband.

My best wishes to you both,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: It's not a cure, but stable is good.

Julienne.....thanks for sharing the great news with us.  I wish for continued success.
Hugs and love,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: It's not a cure, but stable is good.

Yes!! Stable is good!!
I hope the trial keeps going well for your husband.

~Tiffany~ 31 years young wink Fighting CC since 10-27-2011
Wife to Brian; Mommy to Carter (8) and Madison (4)
http://tiffanyschwantes.wordpress.com/
Liver transplant 7-9-2013

Re: It's not a cure, but stable is good.

This is wonderful!!!
Maria

No matter whether you think that you can, or that you can´t, you´re right
//Henry Ford

Re: It's not a cure, but stable is good.

I never knew how good "stable" sounded until I heard it for myself last Friday!  Congratulations on the good news!

Cindy