Topic: Hospice Support

Haven't posted since October of last year..Mom is on oxygen 24/7 now, but, thank you, God, still no pain.  Just pressure and difficulty breathing as tumor progresses upward/outward. No nausea at this time either.  Treating with Ativan, to take the edge off, and help her sleep.  It is so strange how this disease affects people in so many different ways.  I feel we have been so fortunate thus far.

We are in the St. Louis area and have been blessed to have not only a wonderful, caring hospice nurse, but a chaplain who sings/prays/talks with Mom, a music therapist, (truly an angel), who sings non-stop for 40-45 minutes and a Luminary volunteer who is summarzing with Mom some of her favorite life memories.  There are no words to describe hearing your Mom singing along with either hymns or "happy" songs and sharing life stories you've never heard before.  Take advantage of all they have to offer--we feel blessed indeed.  And on this roller coaster ride, it's nice to have another sounding board. 

I read all the posts and want to thank you all for sharing..it helps, doesn't it?  Praying for you all.

Re: Hospice Support

Thank you for this lovely post. I'm thinking of you, your mum & family. My sister is in & out of Hospice for symptom control (she's back in at the moment) but the visits are getting more & more frequent, as the disease progresses. I fond your post strangely comforting, considering how sad the whole situation is. I hope that makes sense.

Thank you
Julia

“When it is dark enough, you can see the stars." - Ralph Waldo Emerson

Re: Hospice Support

Athome...I wish for your Mom's journey to continue and to stay as pain free and peaceful as it is presently.  Indeed we are fortunate to have this board, as it allows us the opportunity to share out thoughts and provide us with the support needed when touched by this cancer. 
Thank you for your post.
Hugs and love,
Marion

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Re: Hospice Support

Dear AlHomeGrown, I have written many times on here now of feeling so priviledged and of the pure awesomeness of my husbands Passing a year ago. I try to remember the  beauty of it as it was something I never expected to see.  I hope her peaceful journey continues and I do thank you for the lovely post. Our thoughts and prayers are with you.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.