Hi, everyone .
The most important motivation for me volunteering for this web site
is ,among others, to try to make a point to all of u, the patients as well as caregivers, should have PREPARE an ACTION PLAN for the COURSE AHEAD of this disease development .
Whether you are looking for encouragement as I first did, or research for knowledge to help to fight for this cancer.
Especially when the patient's condition is stable and mobile;
AT that point ,you can go around the country or the world to seek better treatment or get 2nd and third opinion; to seek DIFFERENT SPECIALIST opinions.
1. see the hepatologist-liver specialist first to get a complete picture of the disease state ; ask him/her questions you have about stents;plastic or metal;coated or not coated is better; at what point do i know to need to change stents base on the sludge thickness ; any other suggestions for me to manage the stents and my liver better. Is the current treatment adequate? other medical or surgical method that you can suggest that can help or improve the control the bile flow with or without the stent;ask what is the prognosis on your current condition ;can he suggest some medications for better treatment of the bile flow and targeted agents for the recurrence of the CCA.that may happen in the future. why it is so easy for recurrence; you may read a lot about the above information from the internet and here ; but it is not as the same as when you hear from the hepatologist for your liver.
Finally, ask the names of doctors (GI specialist, oncologist & interventional radiologist and hospital that he/she can RECOMMEND to you at your local area or within 50-100 miles radius. based on his/her opinions ,then
2. go to see medical oncology to see whether the current is the optimum treatment and ask for additional chemo treatment plans just in case for future use.(get the names at least for 3-4 with and without targeted agents. and write it down for future reference with your local oncologist);
ask them also TO RECOMMEND NAMES OF ONCOLOGISTs HE CAN refer you to IN YOUR LOCAL AREAS.
3.Since radiology for cancer treatment is developing faster and more precise in its treatment target ; it is also important to see a radiation oncologist for possible radiation treatment plans by interventional means ;ask to suggest a couple names of the radiation treatment plans that may be useful for your condition ;(and write them down for future use.);ASK TO RECOMMEND NAMES of radiologist AND PLACES he/she knows best in your area for each procedure for future reference.
4. If you,the patient, decided palliative care is the best. then try to find out alternative treatment plans and facility to extend the quality of life to the best that you can without regrets. life is a journey and will be continued at a different place after all.
Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.