Topic: Introduction: 41-yr-old Stage IV Extrahepatic CC
Hi Everyone, My husband (41 years old) was diagnosed in January with metastatic extrahepatic CC (what a moutful!). He is midway through his first round of cisplatin/gemzar and will be switching to carboplatin/gemzar next round in hopes of reducing nausea. Except for pain in his gallbladder, which started after his metal stent was placed, he's in pretty good health. I haven't seen many people posting on here at this age with extrahepatic stage 4, so hoping my post will bring you out of the woodwork. It would be nice to have a community to talk to. We are reading a couple of books: "Healing Words" and "The Anatomy of Hope." We've been told contradictory things about his future which range from "get your affairs in order" to "with chemo the tumor in your bile duct could one day be resected." We have consulted with other oncologists by email, some in person, and even switched oncologists, and they all have recommended the same initial treatment. I'm wondering how they'll know if the chemo is successful since you can't see the tumor on the CT scan? Do they have to remove his stent to do a spyglass of his bile duct again? Or, for this stage, do they just assume that if you're still alive it must be working? Thanks everyone. I appreciate the opportunity to have this community available.