Topic: So far...so good?
I decided to post this in the Good news section, because to me it is good news. I´m not cured, will probably never be resectable but two years after my diagnosis of advanced cholangiocarcinoma I´m still in good health - as good as ever.
My story started April 1st 2010 with one really big tumor and 10-15 small ones all intrahepatic. Unresectable incurable.
I went on with 14 cycles of Gemox, continued with Gemzar+Xeloda, and finally GemCis until december 2011. During this time I also did 5 chemoembolizations. The treatment had good effect and tumors shrinked and some disappeared.
MRI in dec -11 showed that only two tumors had circulation. I then decided to take a break - I felt mentally tired. My doctor thought it was a good idea.
2,5 months chemobreak and A BIT nervous to get the results from the MRI done in 02/28. Got it on tuesday.
My right lobe is very atrofied and a couple of tumors there are now showing signs o life, bloodcirculaion and slightly bigger. The tumors in my big left lobe are still without circulation, some are smaller. No new spread.
This is GOOD!! I don´t need to start chemo at this point, my doc sees no reason for treating my whole body. Going to do my 6th chemoembo within a month.
Of course I hoped for aN MRI showing no life in those little bastards, but htis is second best!
I´m celebrating the 2-year survival with working fulltime again! This is totally amazing!!!! I´m going to run the Gothenburg halfmarathon again in May, and Stockholm Marathon in June.
I have a wonderful life, and so many wonderful things has happened to me these two years.
The past months I have been interviewed in severel healthmagazines here in Sweden (can you imagine!!!???) I´ve been in a radioshow about this Anticancer-approach, and this monday on TV!
I hope I can give someone some hope, of not giving up even though you get the toughest verdict. There are hope!
I suppose you don´t understand Swedish but here´s my minutes of fame in TV
http://svtplay.se/v/2732310/cancersjuka … ade_ge_upp
Bless you all!!