• From: Essex UK
  • Registered: Thu, 08 Nov 2007
  • Posts: 134

Topic: AMMF News from the UK

AMMF has been asked to join the NCRI* Hepatobiliary subcommittee, to represent CC patients here in the UK. This is really good news and we hope it will enable us to raise further questions and concerns on behalf of our supporters, and to receive answers and current thinking from those at the forefront of work on cholangiocarcinoma. A report on the first meeting attended by AMMF is now on the website ...

http://www.ammf.org.uk/2012/03/12/cc-meeting-report


With love and positive thoughts for all our CC family.

Helen xx


*NCRI (the National Cancer Research Institute) is a UK-wide partnership between the government, charity and industry which promotes co-operation in cancer research among the 22 member organisations for the benefit of patients, the public and the scientific community.

  • Lainy
  • Lainy
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  • From: Phoenix AZ
  • Registered: Fri, 13 Jan 2006
  • Posts: 8,213

Re: AMMF News from the UK

Thank you Helen, this is truly remarkable. What great strides you are making over the water! Thank you so very much for all you do!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • Registered: Fri, 12 May 2006
  • Posts: 8,165

Re: AMMF News from the UK

Helen...thank you for passing this on to the patient community.  Great job.
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER
  • Gavin
  • Gavin
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  • From: Scotland - Dundee
  • Registered: Tue, 23 Sep 2008
  • Posts: 4,831

Re: AMMF News from the UK

Thanks Helen! Great work, as always!!

Hugs,

Gavin

  • Registered: Fri, 15 Oct 2010
  • Posts: 1,735

Re: AMMF News from the UK

Hi Helen,
The insight from a specialist through your interviewed about surgery,radiation and chemotherapy are valuable and educational. I learned a lot in the way that how the specialist is thinking about this disease.
A BIG THANKYOU to you,Helen. And please thanks the Professsor for me.
The BILCAP trial, if the patient is in the control arm , the idea that you only receive placebo is tough to take. But the BILCAP study is important in a way that if it works, it will provide a relatively inexpensive treatment,even is not a cure ,to a much larger international patient population.
The thinking of CC as systemic will make me refocusing of my research reading.
PDT may not be the best palliative  radiation treatment for CC,but I think the cyberknife(one form of IBRT) is still in the card as hospitals continue to advertise this relative new technique. Proton and ion beams therapy are not far behind.

Thanks Helen and
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.
  • From: Essex UK
  • Registered: Thu, 08 Nov 2007
  • Posts: 134

Re: AMMF News from the UK

Thank you all!


PCL1029 - my pleasure to get some info for you, little though it was! 


We'll just keep on keeping on ...

Helen x