OK Guys...I emailed Dr. Javle and he replied within the hour (what a great guy). Here is the emails-
Me- Dr Javle,
When we seen you last month, we didn't talk much about surgery. I had a PET scan last Friday and the results looked good to me!
Here is some of the report:
the left lobe intake is less confluent and overall decreased in intendity. Current max SUV is 7-8, previous was 12-13
Right lobe previous SUV was 6-7 now is 3-4.
No other foci of abnormal F-18 uptake.
Specifically, there is no evidenace of abdominal aoric aneurysm. No suspicious pulmonary nodules are appreciated.
Locally positive response to therary without PET/CT evidence of nodal or distant metastases.
With this being said, I would really like for you and your team to look over my case again for surgery. My goal is to have this cancer removed from my body. Also, I had a small reaction to the Cisplatin today: After about 10 minutes my face got blood red, my temp went up, my heart rate was around 130, my bp went up, and I was having shortness of breath. They got it under control, and I got to finish the Cisplatin with it going in at a lower speed.
I also wanted to get you're thoughts on radioembolization, is this something I need to look into? I want to be as proactive as possible with this cancer. I'm worried that the Gemzar and Cisplatin will quit working, and my tumors will grow.
Thanks for your time and support
Dr. Javle- Hi Tiffany, Good news, I am very happy to hear of this. Regarding the cisplatin-this is not uncommon, but we will need steroids, benadryl and pepcid-like for taxol. Please discuss with Dr Shah. I think in future we should give as a slow infusion over 4 hours. The trouble is the amount of tumor in the liver. In your case, I feel we are going to see continued response for a long time. But surgery if less than curative can make things worse.
I do think in future, we will do PET scans whenever you come down. I definitely think Y90 should be considered. But we should get as much mileage from current therapy as possible. I do think its going to work for a while.
With all this being said. I got an email that Dr. Kato is looking at my scans today, and that I will hear today or tomorrow from him. Talk about stress! What if Dr. Kato says yes, and Dr. Javle said no to surgery. Advice. LOL
~Tiffany~ Fighting CC since 10-27-2011
Wife to Brian; Mommy to Carter (11) and Madison (8)
Liver transplant 7-9-2013