Topic: FDA Inaugural Patient Network Meeting, Washington, DC

For those interested in the process of drug approval and other this may be an event you want to attend either, in person or via the internet. 
Please note that you have the option of registering with the option of viewing the webcast. It is at the end of the registration.


US Food and Drug administration FDA

We would like to inform you that the FDA Office of Special Health Issues is hosting its inaugural Patient Network Annual Meeting to discuss how the agency can seek patient input about benefits and risks throughout the life cycle of drug, device and biologic development and approval. The one day meeting will take place on Friday, May 18, 2012, at the FDA's White Oak Campus in Silver Spring, MD. This meeting will also be available through webcast.

The meeting is for patients, caregivers, independent patient advocates, and patient advocate groups, as well as members of the public, including health professional groups, academia, and industry.  The Federal Register Notice announcing this meeting, provides more background information and a series of questions that will be guide the discussion.  We hope that you will review these questions and come prepared to join in an important discussion about how FDA can more effectively incorporate patient input into its framework for drug, device and biologic approval. 

To register for the Inaugural Patient Network Annual one day meeting, either to attend in person or to view the webcast,  please click here. We do suggest registering early as space is limited.  If you have any questions please do not hesitate to contact steve.morin@fda.hhs.gov.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: FDA Inaugural Patient Network Meeting, Washington, DC

Do you have the link for this Marion? It says in the piece that to register please click here, but we can't! Thanks!!

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: FDA Inaugural Patient Network Meeting, Washington, DC

Wow...it did not include the link.  Thanks Gavin for pointing this out.  I will have to try to find it another way.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: FDA Inaugural Patient Network Meeting, Washington, DC

Here it is:
https://www.signup4.net/Public/ap.aspx? … ovdelivery

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: FDA Inaugural Patient Network Meeting, Washington, DC

Thanks Marion, your link works!

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.