Topic: New to site - Lost my Beloved Dad - Ft. Worth, Texas
This is my first post. I lost my beloved dad to cc on 3/30/2012. It is still surreal to me that he is actually gone. Forgive me for being longwinded. Dad starting feeling bad 08/2011, a trip to the ER resulted in his gallbladder being removed. That helped for about 2 weeks. He then had a stone removed from his bile duct and a stent placed in the pancreas (ERCP). Another trip to the
ER day before Thanksgiving 2011, his pain was unbearable, he was then diagnosed (for the first time) with liver cancer. He then visited a oncologist and had a IR biopsy (no results - necrotic tissue). He then had a laprascopic biopsy done by a surgical oncologist (no results - necrotic tissue). He was told by the surgical oncologist that he had hepatitis. No cancer for the first time, he continued to decline and feel HORRIBLE/HORRIBLE. He then visited a top gastro guy, who determined it was not hepatitis and he felt it was CANCER. (2nd time it was cancer). He was then referred to a liver/pancreas specialist (surgeon), he was then told it was cancer (cc). It is now Feb 2012, and has lost over 50 pounds and is living off frosted flakes and little else. The diarrhea was horrible and explosive. He ends up in the hospital with spesis (sic). Which I now know is part of cc. The ER doctor advises how close he was to death. He bounces back and looks good, he then goes to rehab to regain some strength so that maybe he can withstand treatment for the cc (whatever the treatment is that the doctors FINALLY decide to do). It's a Tuesday 3/20 and the specialist says its NOT CANCER (2nd time its not). The pathologist cannot find cancer in the biopsy slides. He then visits the 7th doctor (3/23/2012), who tells that it is in fact cancer - cc (3rd time it is CANCER). My dad is failing again. I have taken my dad to every appointment and been by his side every step. It is at this point on 3/23/2012, that I come unglued and expressed to doctor "Can you not tell he is suffering and needs to be admitted and you (doctors) need to figure out something". He is admitted and on 3/24/2012 an internal medicine doctor says it is cc and there is nothing they can do for him, and hospice to control the pain is the best course. He enters inpatient hospice ON 03/25/2012, to get the pain managed (which his pain was left unchecked for the last 8 months - they had him on Tramadol, which did NOTHING). To wrap this up, the Hospice nurses at Vitas - Baylor - Ft. Worth are Angels on earth. They explained everything, and got the pain managed, and let Mother Nature take over. My Beloved Dad "PoP" passed at 6:34am on Friday - 3/30/2012. This is a horrific disease. I just don't understand why in a major metropolitian area my father could not be diagnosed and treated, or at the very least be given pain meds to make him comfortable. I was/am ignorant to how effective certain types of pain meds are. Peace, Prayers, Love and Patience to all.