Topic: My Cancer Story

Hi folks.  My name is Ken, I'm 59 years old, I live in Vancouver, Canada, and in 2009 I was diagnosed with liver cancer.

I had to undergo surgery and later chemotherapy. 

Earlier in 2009, I was feeling a lot of pain in my stomach, and I walked up to the hospital not knowing what it was. The ER Dr. didn't know what it was so I had to undergo some tests.  It turned out to be a kidney stone.  This  was soon broken up and removed.  But the tests also showed something on my liver.  More tests showed it was a tumour, 3.2 cm in size.  I got into surgery within 2 months. The surgeon cut half of my liver out, plus my gallbladder and various bits of bile ducts.  That was Jan 12 2010.  I was in hospital for 10 days.  I lost a lot of weight and got quite weak.  I got pneumonia requiring oxygen and strong antibiotics.  My bile ducta collapsed, and a stent was put in to hold it open.  It got blocked up, but that got fixed up.

Tests showed that the tumour was actually a gall bladder cancer - cholangiocarcinoma.  Scans showed some questionable spots in my chest as well, but they couldn't tell what all of them were.

After I got home, I had to rest for several days.  Foods gradually progressed to solids.  I had a drainage tube coming out of my stomach, I think for a least a month,  The surgeon took it out.  I was off work for about 10 months.  Late in the year I had a CT Scan and was told that the cancer had indeed spread.  Some of the spots in my chest were in fact metastases.  I was given Cisplatin and Gemcitabine. I could only tolerate them for about 3 months. I worked during the first weeks of the chemo, but then had to go off again because of exhaustion.  However, the tumours gradually disappeared even though I'd only had a short course of chemo.  I saw my oncologist on April 23, and he told me everything looked good, as it has for the last 2 or 3 scans. Now he wants me to get a CT Scan every 6 months -- I'd been getting them every 3 months. I have to say I feel less stressed now.

I also saw the surgeon once again last week.  He had my CT Scan results from a couple of weeks ago, and confirmed that there weren't any tumours.  I was happy to hear that.

At one point, I was told I had 6 months to live -- but that was about 2 1/2 years ago.

Also in 2010 I had a prostate biopsy.  As it turned out I had prostate cancer as well. I was told that it was slow moving. The Dr. for this cancer told me they would just do active surveillance, because the Cholangiocarinoma was far more dangerous.  Meanwhile, the prostate cancer got more advanced.  Just recently, I started chemotherapy for that - brachytherapy was initially planned, but my anatomy wouldn't allow safe insertion of the needles and radioactive beads.

Another disease that I had was Hep C, and I'd had this for many years.  Just recently, my liver specalist said that I didn't have any evidence of Hep C in my body any more!  This rarely happens, and he was very happy when he told me this.  He'll be double-checking this result with another test in about 6 months, though.

Finally, I can tell you I've changed my eating habits.  I eat more healthily, with more natural foods, including organics, plus vitamins and supplements,  I've been on this regime for 2 years now.  Another thing I've been doing is cycling and lifting weights -- exercise improves survival.

Good luck to everyone!

Ken

Re: My Cancer Story

Best of luck KEN!!!

Re: My Cancer Story

WOW! Ken, welcome to our extraordinary family and sorry you had to join us. You are not only a survivor who has been through it all, you are one of our Miracles and we love the Miracle stories. Keep up the good work and please do keep us posted as we need strong people with good attitudes like yours and most of all members sharing lots of hope!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: My Cancer Story

Thanks, Ken, for sharing your story. It give us all hope that we, too, can beat this horrible disease. Wishing you well with your chemo for prostate! May it be as successful as the chemo for cc was.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: My Cancer Story

Ken...what a powerful story you share.  Thank you. 
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: My Cancer Story

Thank you Ken...

Great story, great advise!!

Keeping it all natural!!

Joe

Re: My Cancer Story

Hi Ken,

Welcome to the site. Sorry you had to join us all but glad that you have. And my thanks to you for sharing your story with us all. Wow! You sure have been through it with everything that has happened to you! Hoping that the good news continues for you and looking forward to hearing more from you.

Best wishes,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: My Cancer Story

Wow!! Thank you so much for sharing your story!! Gives me, and I´m sure a lot of people, hope!!
Lots of good energy to you to keep up the fight for a good and healthy life <3
//Maria

No matter whether you think that you can, or that you can´t, you´re right
//Henry Ford

Re: My Cancer Story

Thanks for sharing your story, Ken, and welcome to this site.  Your story offers hope to all of us. Thank you for that and please keep us posted on how you are doing. Take care.

-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.