Topic: CTCA

Whwts everyone's thoughts on them?  Just talked to them for am hour, and it seems like a good deal, they will fly you for free!! But it worries me they will not work with my local onc.
Thoughts?

~Tiffany~ 31 years young wink Fighting CC since 10-27-2011
Wife to Brian; Mommy to Carter (8) and Madison (4)
http://tiffanyschwantes.wordpress.com/
Liver transplant 7-9-2013

2 (edited by Lainy Fri, 18 May 2012 10:58:42)

Re: CTCA

Hi Tiff.  I know there were a few who tried CTCA. Go to our Search button at the top and type in Cancer Treatment Centers of America and a bunch of posts will come up on them.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: CTCA

What is CTCA?

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: CTCA

Tiff:
I know they are not affiliated with Aetna. Aetna will not accept their charges and doesn't work with them or vice versa. And the only other thing I know is a former coworker told me not to go there. Nothing else known.
Randi: Cancer Treatment Centers of America

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: CTCA

I just wish I knew where THE BEST is. I'm willing to go any where. This is so hard and confusing.

~Tiffany~ 31 years young wink Fighting CC since 10-27-2011
Wife to Brian; Mommy to Carter (8) and Madison (4)
http://tiffanyschwantes.wordpress.com/
Liver transplant 7-9-2013

Re: CTCA

Tiff: You have a great team at MD Anderson. They are one of the best in the country. If you can get into NY Presbyterian or Sloan Kettering they are among the best, too. You have to trust your docs at some point.
I know it's hard. What if I went here? What if I did this? I think that's the hardest part. At least with "known" cancers there are certain protocols and we don't have that. So we just have to believe what we are doing is the right way for us to go. And trust that God is holding us and leading us the right way. It sucks but it's all we've got. Hope in us, God and our docs.
Gavin posted a new thread about Dichloracetate but I couldn't read it. I'm going to ask Dr. Kemeny when I see her on the 30th. Maybe the researchers are getting somewhere!! We can only hope that's the case.
Love you, girl. Stay strong! Good luck this week in TX!!!

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: CTCA

Kris- your right. I just needed to put my trust in them. It's hard!!! I can't find that post on Dichloracetate. Can you post the link for it, or send me in the right direction? I would like to read up on it. I want to go to MDA with a load of info.

~Tiffany~ 31 years young wink Fighting CC since 10-27-2011
Wife to Brian; Mommy to Carter (8) and Madison (4)
http://tiffanyschwantes.wordpress.com/
Liver transplant 7-9-2013

Re: CTCA

Tiff: One of the posts is the top on in New Developments. But I signed onto that website and still couldn't read the entire thing. They say to take it with omeprazole and Tamoxafil (sp) to fight cancer cells.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.