Tiff: You have a great team at MD Anderson. They are one of the best in the country. If you can get into NY Presbyterian or Sloan Kettering they are among the best, too. You have to trust your docs at some point.
I know it's hard. What if I went here? What if I did this? I think that's the hardest part. At least with "known" cancers there are certain protocols and we don't have that. So we just have to believe what we are doing is the right way for us to go. And trust that God is holding us and leading us the right way. It sucks but it's all we've got. Hope in us, God and our docs.
Gavin posted a new thread about Dichloracetate but I couldn't read it. I'm going to ask Dr. Kemeny when I see her on the 30th. Maybe the researchers are getting somewhere!! We can only hope that's the case.
Love you, girl. Stay strong! Good luck this week in TX!!!
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.