Topic: Anyone experiencie similar situation?
First please excuse any questions I might have that have answers posted. Although I read often and a lot, I am sure I have missed much. Also, please excuse the length. I will be as brief as possible.
I was diagnosed with CC 11 months ago. After researching my options and various treatments, I decided on Johns Hopkins in Baltimore. I have had 2 targeted chemo embolism (TACE) treatments and 8 cycles of cisplatin/gemzar. The TACE treatments were a challenge. I developed absessess and had to have drains for several months as well as a few hospital stays and transfusions. Chemo has not been that bad, thank God. Recently, I had all my scans, MRI,etc. including a bone scan as the MRI showed lesions on my spine. I am truly blessed as there is no metastasis. My tumors (3) have shrank and shown considerable necrosis, but are still inoperable and the surgeon feels there is little chance they will ever be operable as my largest tumor covers the portal vein and other important veins. They are proposing more chemo to continue to shrink and contain the cancer and possibly radiation in the future. I am wondering if anyone has been in this situation or if anyone knows how long this treatment on the average goes on? So far I tolerate chemo fairly well. A few weeks of low blood counts, but bounced back. I do worry about my kidneys, etc. I feel good mostly and people tell me look good overall. I am am asking this question mainly due to pressure to go back to work at least part time. I am not sure now that would affect me overall or what the prognosis is for my situation. The doctors tell me it varies so much they cannot provide me any estimate. Any shared similar experience or info will be greatly appreciated.