Re: Mum just been diagnosed Ninewells

there is a wonderful cancer institute in England....

Re: Mum just been diagnosed Ninewells

Hi Roni.....how is your Mom coming along?
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Mum just been diagnosed Ninewells

Hello everyone.

Haven't been on for a while so here is an update. For another couple of months my Mum has made it through.Her tenacity and fighting spirit has surprised everyone including her doctors and caregivers.She has been taken off the driver meds. and put on morphine patches and the past few days even shown some improvement.They had her up for short periods and dressed ,sitting in a chair ,after six months in bed.She was taken for a bath yesterday and her hair washed which pleased her greatly.

Today she is not so well again and has blown up one of her fevers,so all this apparent recovery is down the pan once more.

It is very much one day at a time with this CC. She does not have too much pain and is able to eat a little every day.She is still communicating well most days,although she does have sleepy periods.

I cannot believe it's nearly a year since their Diamond Wedding party.My folks will have been married 61 years next month.

Stay strong everyone and don't hold back on the love,

ScottsMum

A hard journey means a joyful arrival

Re: Mum just been diagnosed Ninewells

Dear Scottsmum, Thank you for the update on your Mum and sorry for the roller coaster ride but that is howit seems to go. The bottom line is her comfort and if sheis comfortable I guess that is all anyone can ask for. Hang in, be strong, look for and enjoy the better days.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Mum just been diagnosed Ninewells

Hi Scottsmum.....you said it all:  stay strong and don't hold back on the love.  Thanks for checking in with us and know that we are sending a tidal wave of strengths your way.
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Mum just been diagnosed Ninewells

Hi Scottsmum,

It is good to hear from you and thank you so much for letting us know how your mum is doing right now. She is such a fighter indeed and what a strong spirit she has too. It sounds like your mums doctors and care team are doing a great job in helping keep your mum as comfortable as they can and this is so important now. Taking things one day at a time, well that sounds like a good idea to me and I so hope that you can enjoy these good days with your mum. Thinking of you and your mum right now and please, remember that we are all here for you.

My best wishes to you and your mum,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Mum just been diagnosed Ninewells

Hello again everyone,

In a more earth shattering update we have just received news today of a recent scan that Mum had last Friday.

Her tumour appears to be in REMISSION!!!!

Her metal stent is in position and functioning well and there are no detectable or apparent secondary growths to the liver or the pancreas. The tumour mass shown in place around the bile duct in last year's scan is gone or so small now as to be undetectable on the recent scan .

This at least explains her improvement ,and then some! We are all a bit taken aback ,and I'm very concerned now regarding her long term care as she is completely helpless, really.A battle will now start again with my father who was overwhelmed trying to look after her at home last time.He is 83 years old and not up to the job ,but try telling him that!

However I hope that the news of her tumour receding gives succour to the many others out there going through their own journey at this time.
She had NO treatment or chemo ,and seemed to put it out of her mind completely that she had a cancer.Her own body seems to have done the rest.
I still cannot believe I am writing this.I hope that they have not mixed up the results!

So onward into an unknown future ,still one day at a time.

Blessings to every one of you ,and I wish you all your own miracle.

ScottsMum

A hard journey means a joyful arrival

Re: Mum just been diagnosed Ninewells

Dear Scott's Mum, Talk about MIRACLES!  Wow!  The only suggestion I have for her care is if you can find someone to come in days and help out. It was hard when my parents reached their 80's but I got very firm and told them how things were going to be...guess  what? They listened. Wishing you a ton of luck and best wishes and love the outcome when a Miracle is involved!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Mum just been diagnosed Ninewells

Scott.....we have witnessed it before for some tumors to become inactive and to just "sit" there or, as it happened in your Mom's case, to recede significantly.  Congratulations, this is fantastic news and a good time for everyone to take a break and enjoy each day to the fullest.
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Mum just been diagnosed Ninewells

Hello to all at CC forum,

Having no news from me since September 2011 when my Mum's cancer was deemed in remission; she has spent the last months of her life in a wonderfully homely care home a few miles from our town and sadly passed away on 18th May 2012.She was 83 years old and until her strokes and CC diagnosis had lived a wonderful life.

She appeared to have had an upper GI bleed which may or may not had to do with CC mets.We have decided against a post mortem/autopsy ,her poor body had been through enough trauma.She was very frail but fought with spirit to the end,which when it came was mercifully quick and peaceful after her long journey.

God Speed Mum we love you--Fly little bird!

My best wishes to you all,and thanks for your support in the past.

ScottsMum

A hard journey means a joyful arrival

Re: Mum just been diagnosed Ninewells

Dear ScottsMum,

I am sorry to hear of your mom's passing, but glad to know it was quick and peaceful.   She is in a better place, no longer in pain or suffering and will always be with your in your heart and memories.  My best wishes to  you and your family at this sad time.

Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Mum just been diagnosed Ninewells

Dear ScottsMum,

I am so very sorry indeed to hear of the passing of your dear mum. Please accept my sincerest condolences and know that my thoughts are with you and your family right now.

I am very glad to hear that your mum spent her last months in a wonderful care home not far from you all and also that her passing was quick and peaceful. I know the pain that you feel right now as I felt the same after my dad passed away. And please know that we are all here for you as well.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Mum just been diagnosed Ninewells

Dear Scott, I am so sorry to read about your lovely Mum. Please accept my sincerest sympathies.

Your Mom, through your memories
                             Will never leave you. 
You will feel her tender care from now on
         As a warm serenity in your heart.
Hoping you always feel the encouragement
         Of her love, and hold in memory
All the happy times you spent together.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Mum just been diagnosed Ninewells

I am sorry for the loss of your dear Mum. My hearfelt condolences to you.

-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Mum just been diagnosed Ninewells

Hello and thanks to all who have expressed their sorrow at the passing of my dear Mum,your sentiments are greatly appreciated.
I have gone back and read my posts a couple times now and remember how much it helped me during the hard times of her illness to express my emotions here and "vent" somewhat.It really was a great help.

Also, when I look at the dates involved and how unwell she was in 2010 and again in 2011, I find it almost miraculous that we had so much more time with her than we expected.Also it brings to mind that she had suffered enough and is now in a better place.

We will never know if it was her cancer that finally claimed her or a completely different event, she passed so quickly at the end .

We have all the funeral arrangements in place now for Monday 28th .I hope she is happy with our choice of music and hymns.I shall look for a sign!

To all my supporters here a big thank you----God Bless you all !!!!

ScottsMum.

A hard journey means a joyful arrival

Re: Mum just been diagnosed Ninewells

I just read thru the whole thread, what a fighter! My most humble condolences on your loss, but yes, definitely in a better place. Feel blessed that you all were able to spend more time than you originally thought and make more memories.

Derin

Husband to Eileen, Dad to Hunter (16) and Sydney (14)
Attitude is everything, you have to keep it positive! And take it one day at a time, it's all anyone can do with this disease...