Topic: Good news!!!

So the chemo is still working. We are going to change up the schedule a little in hopes that I don't miss any more.

This time I had a pet scan. MDA had a copy of the pet from my local onc in feb, but it was hard to compare. Dr. Javle said that he could for sure see improvement, and less uptake. Even better news, he has ruled out cc in the lungs. That has always been in question. Not so good news, I might have some more lymph node involvement than we thought (around the neck). I'm not letting that get me down.

Dr. Javle told me today, this is something we are just going to have to manage, like a person having high blood pressure or something. He gave me hope! He said he has seen people live many many years with cc. He is going to bring up Y90 in the tumor meeting this week, so I will hear more about that in the next few weeks.

So....for right now, more gemzar and xeloda. And I'm ok with that. It's doing it's job! I'm thankful it's still working.

Yay for good news. Also I think I'm going to stick with MDA for now as far as major cancer centers go. I do believe that I will send dr. Kate a copy of the pet scan, but I wonder how much he can tell from it as far as looking at surgery?

~Tiffany~ 31 years young wink Fighting CC since 10-27-2011
Wife to Brian; Mommy to Carter (8) and Madison (4)
http://tiffanyschwantes.wordpress.com/
Liver transplant 7-9-2013

Re: Good news!!!

Nice, post, Tiff. We love the good news and like you say, worry about the rest later or maybe never. Keep up the good work and looking forward to more good news!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Good news!!!

Tiff....I love reading the positives described in your posting.  Enjoy.  Obtaining an additional opinion always is a good idea.  If anything it will confirm what you have already been told. Most physicians welcome inquisitive and informed patients.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Good news!!!

Hi Tiff,

Loving hearing your good news, Yay for good news indeed!! Hoping for more good news with the Y-90 and please let us know what comes from the meeting next week. And loving your positive attitude as well! Go Tiff!!!

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Good news!!!

I love your good news Tiffany!  I also like that Dr. Javle said that he has seen people with CC live many, many years!  That gives me hope!

Cindy

Re: Good news!!!

Tiff,

I am so happy they are considering Y-90 for you. Hoping and praying for awesome results!

Love, -Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Good news!!!

Yay Tiff! Sounds like you have a great Doctor and he is on top of things! Keep us posted on the Y-90. Sending lots of healing hugs! Nancy

Loving my husband from afar.

Re: Good news!!!

I just got my blood work report from md Anderson. My ca19-9 dropped from 52 to 33 in less than a month!!

~Tiffany~ 31 years young wink Fighting CC since 10-27-2011
Wife to Brian; Mommy to Carter (8) and Madison (4)
http://tiffanyschwantes.wordpress.com/
Liver transplant 7-9-2013

Re: Good news!!!

YEA! We love to hear about 'droppings". In a way we love the downward trends. Maybe you can start a fad here!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Good news!!!

I sure hope so!! I'm shocked it dropped that much in a month. I think it's the xeloda!! I have been on it a month.

~Tiffany~ 31 years young wink Fighting CC since 10-27-2011
Wife to Brian; Mommy to Carter (8) and Madison (4)
http://tiffanyschwantes.wordpress.com/
Liver transplant 7-9-2013