Topic: Recommended doctors on West Coast
My husband was diagnosed with cholangiocarcinoma in April 2011. He had a lymph node dissection and ablation of 2 tumors at Memorial Sloan Kettering by Dr. William Jarnigan. He was a great doctor but since then we have hooked up with 2 doctors out in California that we feel are superb. He is followed by an oncologist, Dr. Anthony El-Khouieri, at University of Southern California Norris Cancer Center. Dr. El-Khouieri placed him on a regimen of cisplatin, gemcitabine and erbitux. He has had a remarkable response with what appears to be radiologically a remission and his CA 19-9 well down to the normal range. Because the original tumors were only ablated our oncologist felt we should see another surgeon for not only a resection but also to reconstruct the vessels into and out of the liver. We met with Dr. Yuri Genyk, also at University of Southern California. He performed a 17 hour surgery during which he removed the left lobe of the liver, the head of the pancreas, part of the stomach and also completely reconstructed the vessels going into and out of the liver. He has been incredibly hands on during the recovery and, as our oncologist tells us, performed a surgery that very few people can or are willing to do. If you are on the west coast I highly recommend that you consider getting an opinion from these two doctors. Dr. El-Khouieri is also one of few oncologists who specialize in cholangiocarcinoma. He has given us real hope for a cure for my 40 year old husband, the father of my 3 young children!