Topic: Through my husband, i join this very scary world of cholangiocarcinom
Five months ago we were sailing in the BVI's and three months ago my husband had chest pain, leading us down a path to stage four cholangiocarcinoma, tumor on his liver and many many spots all over his lungs!
How does this happen! He just turned 61 last week. We have to many plans for many years to come! Because we have read all the stuff on this very agressive cancer, we are having a Celebration of Life party for him this weekend.
I am so thrown off by all of this, my world feels like it is spinning out of control. I need to know what to expect. His belly is growing, he is having elimination problems, water retention. We have met with a doc from the local Hospice Program about care and gave good advice but dealing with this, seeing him SO uncomfortable I am looking for advice.