Topic: Any experience or suggestions regarding belinostat clinical trials?
Hi! everybody, I want to first thank the moderators of this forum, as well as everyone on it for sharing their experiences.
I'm posting for the first time, on behalf of a friend who's recently been diagnosed with cholangiocarcinoma. He is seeing doctors at Moffitt and was told that since the tumor had affected both sides of the liver, and was impinging on the secondary ducts, resection is ruled out.
They have re-stented him once, then placed external drains on both sides twice, in an attempt to get his bilirubin count down, but no luck yet.
Now, they are considering enrolling him in the active clinical trial with belinostat. I was wondering - does anyone on this forum have experience with this trial or opinions about it. Any information will be very welcome, since we are quite worried about the implications of signing up for it.
thank you very much