My husband passed away less than 2 months from his first symptoms and ER visit. Until then he appeared to be a very active, strong, healthy person. Hardly ever even sick. He was 62 and we had been together for almost 45 years. I met him when I was 15. Together pretty much 24/7. Because he deteriorated so quickly there was no time for anything. He wasn't even positively diagnoised with CC until 2 weeks before he passed. He never was able to build up enough strength for any sort of treatment options. The day he died I had been planning to take him home and was in the process of setting up home hospice. His was a very aggressive interhepatic cholangiocarcioma. Also at stage 4 when diagnoised. It has been almost 4 years and in that time I have seen a lot of progress and changes in diagnosing and treating this disease. It is very unpredictable and therefore no one can say what or when things will occur. Everyone is different. We never had a chance to do the things you are doing and I am so glad that although you are in a bad situation you are doing the best you can and making those memories. I'm sure it seems surreal to you, but I am happy you are able to do these things.
I also have 2 sons, in their 40's. I'm in Plymouth, WI. Not that far from you.
I will be thinking of you this weekend as you celebrate Peter's life. I am also hoping you will be making that trip to Chicago. As Lainy mentioned, you may want to try to get another opinion ASAP.
My best suggestion is to take things as they come. Live for today and take it one day at a time. Otherwise it will overwhelm you.
Love & Hugs,
"One Day At A Time"
All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice. You should always seek the advice of your physician or other qualified health care providers.