Topic: New To This Site--Lost My Husband, Neil, To CC
Hello to everyone, and I'm so sorry for all of the pain and frustration that you're going through. I believe that my husband, Neil, had symptoms of liver disease years ago, specifically, auto-immune hepatitis, that eventually caused his intraheptic CC. His family doctor completely missed every red flag, even glaringly obvious symptoms, and always told him that he was fine. He began to get very sick with shortness of breath, and jaundice last June, and was admitted to the hospital where they diagnosed him with heart failure. He went home, but was re-admitted when he turned very yellow (his family doctor, at first told him that it was "false jaundice", and not to worry about it!), and after he was in there for ten days, they found what they thought was a mass in his bile duct. They transferred him to Cleveland Clinic, where we thought that he would be in good hands, but, unfortunately, while having a bile drain inserted into his duct, they severed his hepatic artery. Neil lived for a week after that, but he was unable to speak due to having been intubated, and he was in a lot of pain. They kept telling me that they couldn't give him pain meds because he needed to "respond" before they could remove the tube in his throat. I asked them a million times what a biopsy that they had taken showed, and they kept saying that it was inconclusive, so myself and the rest of his family never knew that he had cancer until after he passed away. Neil died on August 6th, 2011, without ever knowing that he had cancer, and his heart that supposedly had "failed" beat strongly even while he was in terrible shock from having lost so much blood. It was only after reading his autopsy report, that I found out that he had cholangiocarcinoma, and that it had invaded his lungs, gallbladder, and colon. I feel so much anger at his family doctor for having missed symptoms that occurred years ago, and also at the Cleveland Clinic for having put him through so much unneccessary pain. On the other hand, I am somewhat relieved that he never knew about the cancer that would have eventually led to his death. I have so many mixed feelings right now, and just wanted to come to this site to find some answers to the many questions I have. Thanks for listening...