Topic: How long is the battle?

For those of you that have experienced great success and freedom of CC, how long was your battle prior to being cancer free?

Re: How long is the battle?

I was cancer free 9 months after diagnose, I was lucky enough to qualify for a transplant, but... due to complications from radiation I ended up having 2 transplants. I was diagnosed on July 31, 2008 and spring 2011 I could do all of Walmart by myself!!!! LOL!! It was along 3 years, but I am here to give HOPE and prove there are miracles.
Lots of prayers-Cathy

Re: How long is the battle?

Hi,
To tell the truth,I really don't know,I am sorry. but I am a 36 months survivor  I hope  my picture on this web site will give you some idea of what a CCA  patient looks like  after 3 years of battle.
I always treat this cancer as a chronic disease like hypertension or diabetes;it requires patience,courage and knowledge to manage such a roller coaster ride.
It is not easy to do so; emotional and physical ,it can be  very exhausted.

God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: How long is the battle?

Thank you both!  Roller coaster indeed!  I know we have just begun this journey, but I'm looking forward to my boyfriend seeing positive results.

Praying for you both

-Kendra

Re: How long is the battle?

Hi Kendra,

You asked: how long was your battle prior to being cancer free?

The truth of the matter is, the road to being cancer free lies through surgery. I went back and read all of your previous messages. You didn't mention surgery once. Am I correct to assume that your boyfriend was deemed inoperable by his hospital? I'm also wondering, have you sought a second or third opinion about surgery?

Re: How long is the battle?

Technically, I was 'cancer free' 5 days before I was officially diagnosed last September. We weren't officially told it was CC until the pathology came back after my surgery. 8/29/11 was confirmed that a mass was on the bile duct, 9/14/11 I had the surgery...

Derin

Husband to Eileen, Dad to Hunter (16) and Sydney (14)
Attitude is everything, you have to keep it positive! And take it one day at a time, it's all anyone can do with this disease...

Re: How long is the battle?

Thank you for replying.  I've been in my own world of denial so to speak.  They said he isn't a canidate for surgery since the tumors are all through out his liver, and I believe in his lymphnodes.  He had a scan yesterday and showed that his tumors area already shrinking and some are even gone.  He has only had 4 chemo sessions!  Hopefully once things calm down in there maybe he will be a canadate?  But I do agree a second opinion would be beneficial!  His mom was telling me how horrible the cancer is and that he won't be around next year.  I have a hard time believing this.  Maybe I'm just being naeve, but who's to say we can't keep things at bay and he can have some good years.  Have any of you experianced anything like this?  What were the results without surgery?  This week has been full of ups and downs.  While I don't want to face the reality of this cancer, I also need to know.  (Even though I know there is no positive answer).

Thank you everyone for listening,

Kendra

8 (edited by PCL1029 Fri, 27 Jul 2012 20:35:44)

Re: How long is the battle?

HI,
Surgery is the only possible cure for CCA.
Many patients hope and pray for  for that chance to have surgery.
I will jump on the chance if 2nd opinion on surgery allow your boyfriend to do so.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: How long is the battle?

Hi,
I have had two liver resections, steriotactic radiation twice and I m on my third six month chemo regimen. It's like dealing with a chronic illness so you just keep plugging away never giving up hope or faith.
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: How long is the battle?

Kendra, I was never a candidate for surgery, and don't think I will. I had ten tumors to start with in April 2010, and at most 15-20 (one big 8x10cm and the rest small ones) spread all over my liver.
Two years on chemo, 6 chemoembolizations later I'm still feeling very well, working (ambulancenurse, sometimes quite hard work) and as I wrote before, ran marathon a month ago.
That is the reality of this cancer, in my case. And I plan on staying this way.
To achieve this I work hard, everyday. Training 5-6 days a week, tired or not. I eat as my life depend on it, and I've done a lot of research on complementary medicin, and use it a lot.
I believe there is a way to stay healthy without surgery, and I do my best to proove it.

Don't loose faith! <3
Maria

No matter whether you think that you can, or that you can´t, you´re right
//Henry Ford