Re: intrahepatic cc

Hi Jason - Just thought I would pop in and see how your mom is doing these days?  Hoping all is well and she is well on the recovery road.  Wishing you the best and all the blessing for this holiday season!  Val

Re: intrahepatic cc

Hi,vtimm,
I communicated with him via e mail messages since  he joined this web site.
he wrote a thank you note  to me the date  after his mom  resection and everything is fine. I think they will have a wonderful Christmas.He  and I are from the same university in Iowa.
I think he will talk to me again if concern about her mom comes up. But so far none of that happen and I think  that is a good sign. don't you think so too?
thanks for your concern about fellow CCA patients.
Keep in touch, do whatever you can to make this disease go away.
god bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: intrahepatic cc

Hello everyone -  I wanted to give the group an update on my mom.  She had her 6 month post-surgical appointment last week.  Everything went great.  The surgeon was more than pleased with her progress and her scans were all clear.  She had numerous complications from the surgery, but her surgeon and family practitioner have been wonderful.  It was very inspirational last Friday as we participated in our Relay for Life event and she walked for nearly 3 hours.  The people on this board have been a gift from God and a special thank you to Percy and Cathy.  We highly recommend Dr. Chapman from Barnes Jewish in St. Louis and Dr. Nagorney from Mayo clinic...they are the best of the best.  Most of all, keep faith in God.  The last 13 months have been quite a ride and there is no way we could have made it this far without His help.  Thank you for all of your prayers.  Jason

Re: intrahepatic cc

Jason, I cannot think of any better news than this, Congratulations to you all! Keep up the good work and can't wait to hear the next great report!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: intrahepatic cc

Hi, treejay,

Thanks for your compliment.  I am very happy to hear the good news about your mom. wow is it true that has been 13 months already? time flies for sure.
And yes, I agree totally this is a roller coaster ride all the way till they will find the CURE for us. but at least your mom can has this ride for years to come.
Keep on fighting and take good care of your mom like you have done already. Not so many children can do what you had done for your mom,looking up information;traveling far far away to different places thousands miles apart across America to find the best medical care for your mom. I even cannot do that for myself .
keep in touch and
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: intrahepatic cc

Hi Jason,

That is great news indeed about your mum! Congratulations and my thanks to you for coming back here and sharing it with us all. I hope for your mums good news to continue and hopefully the next 13 months will be easier for her! And well done as well for the Race for Life, no wonder it was such an inspirational day for you all. Let us know how things go for your mum.

Best wishes,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

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Jason-Thank you thank you, not for my compliment but by paying it forward and acknowledging Dr. Chapman, he is a special man with so much heart and soul. Thank you for the compliment also because I worry that by sharing my story people think I am bragging. I tell my story to give HOPE and thank God, 2 strangers and Dr. Chapman for giving me life.
Lots of prayers for my CC family-Cathy

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Cathy, don't you dare stop telling your story!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.