Topic: my mum- trouble with diagnosis by biopsy
Hello, I'm new to the site.
My mum was "diagnosed" with cc 3 weeks ago. She went to the doctor because she developed severe jaundice and she was immediately reffered to hospital for tests. Her bilirubin levels were 500 but she has recently had 2 metal stents put in by PTC method. That was a horible experience for her, but her bilirubin levels have now dropped to 240 and are still dropping and she is feeling much better for this, so all in all, the stents have so far been a success.
The doctors have said that they cannot operate on her tumour, due to it being located next to some major blood vessels. However, they propose to start chemo in order to shrink it or at leat keep it at bay. They can't start chemo yet due to the amount of weight she's lost and also due to the fact that her bilirubin levels are still too high, but they want to start it in the next few weeks.
The trouble is, when mum was having her stents put in, a biposy was taken by brush in order to obtain a definite diagnosis of cc and also to grade and stage it. However, the results from the diagnosis came back as undefinitive. The doctor has said that she is 99% sure that it is cc but that the only way of getting a proper diagnosis is by biopsy. At first, she said that they could probably just start chemo without having this "official" diagnosis, however mum's oncologist has said that she needs to have another biopsy by PTC in order to get a diagnosis before starting chemo.
We are all obviously worried about too much time passing before starting chemo, and mum is really dreading having another PTC procedure as she found it quite traumatic the first time.
Has anybody else had any trouble with obtaining a definitive diagnosis by biopsy?
Any info would be greatly appreciated.