Topic: Researching demographics on environmental causes

My name is Kristin, I live in Sedona, Arizona.  My young neighbor died this year of Cholangiocarcinoma.  Two weeks later another neighbor died of a sudden onset of pancreatic cancer.  Many of my neighbors including myself and my husband have liver pain, liver, spasms, swollen livers and elevated liver enzymes. I am 43 years old and do not drink.  My husband is a Naturopathic doctor.

I believe we have found a  previously unknown environmental cause of this disease.  I would like to hear from everyone: name, age, location of home, length of time living there, date of diagnosis.

Sedona is a small town with no industry, yet we have many teenagers with cancer, including ovarian cancer which is a disease of older women.

My email is: sedonaschnebly@yahoo.com
My telephone number is 928-202-3612.

I Can, I AM, I Have, I Will, I Love, I Choose, I Create, I Enjoy.

Re: Researching demographics on environmental causes

Kristin...I am sorry to hear of the development within your City.  Would you please share a bit more with us:
What do you suspect is the reason for the cluster of cancer occurrences?   
What do you intend to do with the names and addresses solicited from this site? 
I would love to hear from you.

Best,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Researching demographics on environmental causes

Hi,
Thanks for posting the question.
But if I may suggest,  if people especially the younger generation who love and enjoy sushi; unless it is from a very reputable and expensive sushi restaurant; ; the  raw fish may come from sources other than Japan; such as Thailand or Vietnam or even China or the southeast Asia region, then the frozen raw fish may contain the eggs of the liver worms and thus increase the chance to have cholangiocarcinoma or other forms of liver problems. Same reasoning for the people enjoy Thai or Vietnamese cooking especially the "hot pot", if the water is not hot enough ;the same problem will exist too.
The other reason that the cholangiocarcinoma be detected more and more every year may be contributed to better diagnosis and awareness of the sub-types of the liver disease.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

4 (edited by eli Tue, 03 Jul 2012 13:39:41)

Re: Researching demographics on environmental causes

Population of Arizona in 2011: 6,482,505

Source: Wikipedia
http://en.wikipedia.org/wiki/Arizona#Demographics

New cancer cases in Arizona, 2012 estimate: 31,990

Source: American Cancer Society
http://www.cancer.org/acs/groups/conten … 031941.pdf

31,990 / 6,482,505 = 0.004934821

Or, in other words:

Incidence rate of cancer in Arizona is 493 new cancer cases per year per 100,000 of population.

Population of Sedona in 2010: 10,031

Source: Wikipedia
http://en.wikipedia.org/wiki/Sedona

If we take Arizona cancer rate and apply it to Sedona, Sedona is expected to have this many new cancer cases each and every year:

10,031 * 0.004934821 = 49.5

Kristin, my question to you is this:

What is the actual number of new cancer cases diagnosed in town each year?  Is it much higher than the estimate I gave you? If the actual number is close to the estimate, it means that your town is doing no worse than the state as a whole.

Re: Researching demographics on environmental causes

Hi Kristin, I live in Gilbert AZ and have been here 17 years. This is so unbelievable about Sedona. It is such a 'pristine' place and I simply cannot imagine something like this going on there, not to say it can't. I am not so sure our members will feel comfortable turning all their information over at this point. What do you think is the environmental problem in Sedona that you have found?
I have been worried along with Percy about the Sushi phoenomena going on. I do believe we need to know more  before asking our members to give out their numbers and etc. Your input is very appreciated.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Researching demographics on environmental causes

Hi Kristen, I am 48 years old and was diagnosed almost two years ago. We live in Bath, Ohio. Our development is on the old Firestone property and I wonder what type of chemicals they dumped here when it was just open land. My next door neighbor died of gliobastoma at 50 and another of prostate cancer at 48. I don't drink and I don't eat any raw fish. We have lived here for ten years. I no longer drink our water even though we have an extensive water filtration system and have had our water tested. Call me if you want to chat 330-903-6868.
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Researching demographics on environmental causes

Thanks to everyone who read(s) my post and replied.  Please go to www.closetheairport.com, the front page has a copy of my blood test from May 17th showing my blood is full of jet fuel.  My husband's test is the same.

Sedona is the site of illegal jet fuel dumping! Anyone living near any airport, including very small airports is at risk of breathing raw jet fuel.  I know we are being dumped on here and since this happens in Sedona it must happen in other towns.  Sedona is not the only town with a short runway.

Please everyone, read my website and sign my petition on change.org if you would be so kind.

I am gathering evidence to send to the FAA and Congress to stop this illegal jet fuel dumping.  It will continue as long as there are airports in small towns that can accommodate jets.  Living near an international airport is also a cancer risk.  Cancer rates are higher within 30 miles of any large airport.
The FAA claims there are 127 high altitude jet fuel dumps per year.  That number is far exceeded in low altitude jet fuel dumps by small business jets.  We have endured up to three jet fuel dumps per week!

The FAA is already investigating out situation, however; this is not going to help the rest of the country.  We are being poisoned here so others are as well.  It is not easy to realize jet fuel dumping is occurring because one must be outside when it occurs, be in the flight path and be close enough to the jet itself.  My house is also glass so I have a view of every jet even when I am in the house. My neighbors at lower elevation were unaware this was happening because they were not home, not able to smell it and not able to see the jets. 

People think of Sedona as a safe and pristine place but I have learned the hard way that this is not true, we are living in a very dangerous place. My neighborhood is a bowl (Red Rock Crossing), with canyons and washes. There is no way for the jet pollution to leave our area; we literally suffocate here.

I have an extensive website up. My husband has scarred lungs from inhaling jet fuel since 2009.  I have a long list of health symptoms, including intermittent high blood pressure and I have a BP of 118/68 normally.
I discovered the jet fuel dumping shortly after my neighbor Amanda died.
It is impossible to develop this form of cancer at age 20, it is most definitely environmental. 

Here is a recent newspaper article the Red Rock News ran on me; this was before I knew it was the jet fuel dumping making us sick.  http://redrocknews.com/News/woman-works … rport.html

If you or a loved one suspects jet fuel dumping you can get a blood test as we did.  The Airport/City/County whoever owns it can be held responsible for your damages and wrongful deaths. No one else has uncovered the jet fuel dumping over small towns or linked it to cancer clusters.  We just happen to live in the perfect spot to figure this out and it still took us years.

I Can, I AM, I Have, I Will, I Love, I Choose, I Create, I Enjoy.

Re: Researching demographics on environmental causes

Please look at your area and symptoms. One of the symptoms of jet fuel dumping is a rise in blood pressure and heart rate.  The EPA said that 99% of all cancers within 30 miles of Chicago-Midway were caused by the airport. Some people do not realize their BP is up, they just feel restless and cannot sleep.

Look at hexavalent chromium in the water and other chemicals, look at geography, flight patterns, and car exhaust, as well as chemical plants, things that are being burnt.  Obviously there are other carcinogens that could cause cancer besides jet fuel dumping.

Everyone has a different ability to handle toxin loads, this is based on your personal methylation profile.  Methylation is why one person will get a vaccine and become autistic and another will handle it and be ok.  One of the places where doctors practice detoxing and DNA methylation testing is in Ohio, www.heartfixer.com.  Read the heartfixer website http://www.heartfixer.com/AMRI-Nutrigenomics.htm

Dr Amy Yasko owns the lab that does DNA methylation testing and she sells products for cleaning the methylation pathways and increasing mitochrondrial ATP.  Methylation is also responsible for who gets heart disease and who does not.

Dr Amy Yasko: http://www.holistichealth.com
The lab for VOC testing: www.metametrix.com

Blessings,
Kristin

I Can, I AM, I Have, I Will, I Love, I Choose, I Create, I Enjoy.

Re: Researching demographics on environmental causes

I have wondered about the environmental aspect myself.  Dad lives in a Southern Ohio town called Manchester.  There are two very close powerplants to us and they have been cited many times for EPA violations.  There are many people around my parents with all kinds of illness, from MS, to ALS, to Multiple Myeloma and now Dad with possible CC.  There is also a young girl with something called Castleman's Disease and very rare.  I would like to know if there is a connection to the environment and this is the first I've heard about the jet fuel dumping.

Re: Researching demographics on environmental causes

Kristin,

I find this all very interesting and scary. We live very close to Akron Canton airport in Ohio. My daughter, Lauren, has cholangiocarcinoma and is only 26. My husband and I both have high blood pressure and are on medication. Sounds familiar to you. We also have an old landfill near our house. Thankfully, they put city water in our allotment before we moved here, so we don't use well water. This is all quite upsetting and I will look into it further. Thanks for the info.

-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Researching demographics on environmental causes

Kristin,

Hi.  I'm 32 and was diagnosed at 31 with cholangiocarcinoma.  I live about 1-2 miles away from a small airport.
What are you suggesting we get tested for and where do you get it done at?
There doesn't appear to be a high incidence of cholangiocarcinoma in my area.

Susie

Re: Researching demographics on environmental causes

Hi Susie,

I would like to speak to you on the phone.   I will email you my full lab test that we both had done.  The test is a Volatile Organic Solvents blood test by Metametrix which is a specialty lab.  http://www.metametrix.com/test-menu/pro … e-solvents

Read this also http://www.eltoroairport.org/issues/AWMA-paper.pdf
This is not taking into consideration the illegal jet fuel dumping.  Pilots are dumping, they admit it online on message boards and I had pilots come tell me they do it.  We can smell it when it happens if we are outside. I recommend you also buy a blood pressure monitor if you do not have one already.

Kristin

I Can, I AM, I Have, I Will, I Love, I Choose, I Create, I Enjoy.

Re: Researching demographics on environmental causes

My area has a cluster of various cancers, especially on one street that holds pollution due to the geography and altitude.  I do not have cancer but I have a swollen liver, liver pain and liver spasms and so does my husband.  Our water is 100% clean.  I have only been in this area for three years.

Age, genetics, length of time in an area and how often you are home all factor into this.  We are always home, some people are at work so they ave less exposure. Lisa mentioned living near or on an old tire manufacturing plant, tires are full of benzene and petrochemicals.  Her water may be contaminated, I recommend everyone get this blood test for a starter to see what is in their blood.

If you have trouble sleeping or feel you have a racing heart, check your blood pressure.  Keep track of your intermittent symptoms on a calendar.  All my neighbors have the same symptoms at the same time!  NO jet fuel dump and none of us have high blood pressure.

I Can, I AM, I Have, I Will, I Love, I Choose, I Create, I Enjoy.

Re: Researching demographics on environmental causes

Sedona......I appreciate your information and hope very much that your situation can be remedied.  No one should be subjected to contamination of any type.
However; according to your statements we don’t see a cluster of occurrences of Cholangiocarcinoma in Sedona therefore, I believe that our discussion site is not the right venue for your cause.   
I wish for the best of luck in your pursuit of finding answers to your concerns.
Sincerely,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Researching demographics on environmental causes

Marion, well said. Very diplomatic but to the point. Thank you.

Re: Researching demographics on environmental causes

I disagree with your assessment, we have all types of cancer clustered on one street in my area under the flight path.  It does not have to be only CC to be caused by jet fuel dumping.  The man who died two weeks after Amanda had a biliary system cancer also and he was not a hepatitis C patient or an alcoholic.  I have enough negative liver symptoms that are identical to how my neighbor started off, to be worried about getting liver cancer and so does my husband.  If I sat here and did nothing for another three years then I would probably have liver cancer too.

Jet fuel dumping is a national problem at small airports with short runways and small airports have short runways. 

CC in younger people is an extreme indicator of something very wrong in the environment. Now I am hearing from people who are younger and live near small airports and have they CC. I think the CC/airport connection is an important one that needs to be looked at. If it can happen in Sedona it can happen anywhere.  I do not believe that I need to have only CC cases in one area to find a pattern of CC caused by jet fuel. 

Airports put out an enormous amount of pollution and jet fuel dumping is an extreme case that is becoming very common.  When you fly in an expensive jet losing $5,000 in fuel is not big deal. There are no other environmental factors in my area. I am betting there are many younger people all over our country who have CC and they in fact live near an airport.  I believe barring some other extreme environmental factor, that jet fuel dumping is causing this and many other cancers.  Jet fuel dumping is highly illegal because it is carcinogenic and crashes ones immune system.

I Can, I AM, I Have, I Will, I Love, I Choose, I Create, I Enjoy.

17 (edited by Sedona Thu, 05 Jul 2012 21:09:39)

Re: Researching demographics on environmental causes

Lisa Ann's Dad and Pamela both live near the Akron Canton Airport.  Here are the stats on flights there: Take-Offs and Landings
In 2010: 771,107
In 2009: 715,367
In 2008: 722,337
In 2007: 691,603

In my area we have had about 80,000 flights per year over a small, tight geographical area.
One of the things that started tipping me off that something in my environment was causing our illnesses was the fact that the muscle spasms I had all over my body went away when we went to San Diego to see a neurologist; he diagnosed me with beginning MS. 

If you read this http://www.eltoroairport.org/issues/AWMA-paper.pdf you will see how dangerous airports are and how much cancer they cause.  This does not include jet fuel dumping.  I think it behooves everyone to get these VOC tests if you live near the airport.  I have found that the high blood pressure symptoms match up with the jet fuel dumping and so have my neighbors.

Toxic exposure is progressive and accumulative, as time goes by our tolerance for these toxins decreases as our livers reach the maximum they can handle.  I would like to create a map of cases and look for all the environmental exposures and see everyone get tested at the right times to see what is causing CC.  We feel our heart rates increase and our BP climbs as our toxic load goes higher.

Kristin Monday
928-202-3612 sedonaschnebly@yahoo.com
www.closetheairport.com  My blood test is on the front page, as well as more information about airports and toxins.

I Can, I AM, I Have, I Will, I Love, I Choose, I Create, I Enjoy.

18 (edited by Sedona Thu, 05 Jul 2012 22:12:39)

Re: Researching demographics on environmental causes

To the Power Plant issue: Ohio ranks 2nd in the nation (Texas ranks 1st) for mercury emissions from power plants, releasing a reported 7,358 pounds of mercury into the air in 2002, according to the most recent EPA data. In fact, five of Ohio’s 24 coal-burning power plants landed in the top 40 for mercury emissions out of 500 plants nationwide. These plants include:

¨ AEP Conesville Plant, Conesville, OH – ranked #3 in the nation, 1,300 pounds

¨ J.M. Stuart Station, Manchester, OH – ranked #13 in the nation, 845 pounds

¨ AEP Gavin Plant, Cheshire, OH – ranked #30 in the nation, 660 pounds

¨ AEP Cardinal Plant, Brilliant, OH – ranked #38 in the nation, 560 pounds

¨ W.H. Sammis Plant, Stratton, OH – ranked #40 in the nation, 540 pounds

Lead:  79,000 flights from small piston airplanes emit .75 tons of lead into the air around the airport they use.

What do heavy metals do? https://www.factsontoxicity.com/index1.php
I really like this doctor and what he has to say. He has been curing incurable cancer cases; I recently bought his book. http://www.the9steps.com/

I Can, I AM, I Have, I Will, I Love, I Choose, I Create, I Enjoy.

Re: Researching demographics on environmental causes

My dad has lived within 2 miles of the JM Stuart plant for the last 40 years....

Re: Researching demographics on environmental causes

I am sorry to hear this and sorry for everyone who is suffering from ill health here.  People generally do not realize how dangerous living near a power plant or an airport is.  I was oblivious to both until three years of exposure wore my health down.

I did some checking on Manchester, Ohio, and found that the air quality is very, very poor there. On a scale of 1-10 with 10 best and 1 worst Manchester has an air quality of 1.8!  What is really shocking is the Population is only 2,114.  You would think this kind of poor air quality is something you would find in LA or Phoenix, not a small town.  This scale does not include all the VOC solvents I was tested for.

Living near a super fund site, a brownfield or a polluter makes matters worse, Akron has all of these in high numbers. You can check these facts out on www.homefacts.com  Manchester is also high in radon.  Here is the water report http://www.acrwd.com/sitebuildercontent … crnews.pdf  I do not see a test for hexavalent chromium or any other chemicals. Homefacts used to publish more data on water but I do not see it up any longer or at least not in this area.

The best product I have found to pull metals is called PCA from maxamlab.com, it is an oral clathration product, the metals do not dislodge on the way out and the product has a high affinity for aluminum which is hard to get at.   The company had some set backs and had to retract a lot of their literature due to the FDA calling it an unapproved drug.  I have used this company for many years and I know how well it works for autism and ADD, vaccine damage etc.

I Can, I AM, I Have, I Will, I Love, I Choose, I Create, I Enjoy.

Re: Researching demographics on environmental causes

My husband had prostrate cancer and died of CC.  We were in the airforce for 10 years.  Lots of planes.  He was also a missile safety officer at Patrick Air Force Base.  He said he inspected many dangerous chemicles  used by the the shuttle and other missile systems.

Re: Researching demographics on environmental causes

Kristen, I would like to talk to you about the blood testing you mention. Please call me if you get a chance.
Thanks, Lisa
330-903-6868

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Researching demographics on environmental causes

My brother (48) was diagnosed with CC this year. He has always been a vegetarian, does not drink or smoke, no liver issues or past history of cancer in family.

He is a Management Consultant for 15+ years and the job requires extensive travel- almost everyday. 50% of travel is international - 10+ hour flight and remaining is domestic.

Other than that, I cannot think of other factors to mention.

-Jyoti

Re: Researching demographics on environmental causes

Hi Jyoti,

Let's look at the air and water toxicity exposure. Air travel of course has higher levels than normal of Volatile Organic Solvents.   Go to homefacts.com and look up his area for air quality.  10 being the best and 1 the worst.
My situation is jet fuel dumping near a small airport. I am seeing CC in younger people near airports.

Tire manufacturing facilities, any kind of industry that is spewing pollution or living next to a freeway.

I am sorry your brother is sick, 48 is young for this disease. I just found another new item that beat CC.  I will post it here.  I also think seeing Dr Buttar would be prudent.

Blessings,
Kristin

I Can, I AM, I Have, I Will, I Love, I Choose, I Create, I Enjoy.

Re: Researching demographics on environmental causes

Kristin,

On air toxicity,  he actually consults for manufacturing companies. Visiting steel plants, alloy manufacturers and what not.

He has been in extended projects for such plants consulting on their supply chain. I will find out more if he has been exposed too much in factories and or a specific city.

-Jyoti