Topic: My Husband Lost His Battle

It is with great sorrow that I am writing this post.  My husband, John E. Puffenberger, lost his 4-year battle with ICC on July 8.  He had fought a good fight but the chemoembolization he had on April 17, 2012 led to his death.  He never recovered from it and lost his appetite and 50 plus pounds and was too weak and tired to continue his fight.  We had a bad experience with Hospice the day he died, and I don't think I will ever get over the way he had to leave us.  It was anything but peaceful.  His oncologist called this morning and I relayed the info to him and he said I am the second person in the last six months that has had a similar experience.   He did say that John was an amazing man that overcame the odds and it was an honor and a privilege to be his doctor.   I lost my husband but I also lost my best friend; we had been together for over 38 years.  I will love him forever and always keep him in my heart.  To those of you still fighting, keep on fighting until the end, and maybe one day this terrible disease will be beaten.   Rest well my love until we meet again,  PeggyP

Re: My Husband Lost His Battle

Peggy, I am so sorry for your pain and loss. I pray that God gives you strength, courage and peace.
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: My Husband Lost His Battle

Dearest Peggy, I am so very sorry about your  husband and please accept my most heartfelt condolences.

If I should be the first to go,
And leave you alone, my Dear,
Let not your heart be lonely,
Nor in your eyes a tear.
Grieve not for me, my Darling,
I’ll not be far away,
With petals of love and tenderness,
I’ll pave for you the way.
To join me in our sanctuary,
And ne’er again we’ll part.
Grieve not for me, my Darling,
I live within your heart.
Take joy again in living,
As you did in years gone by;
God knows what of he’s doing,
And not be questioned why.
Grieve not for me, my Darling,
My life with you on earth
Each moment filled with happiness,
And love so few be worth.
I’ll be waiting for you Sweetheart
Where skys are ever blue,
With eager heart and open arms
Patiently, for you.
Grieve not for me, my Darling,
May faith and my love keep.
Your soul filled with contentment
Eternally, I sleep.                                 By Mary Harris

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: My Husband Lost His Battle

Hi, PeggyP,

I cannot find enough words to comfort you except to pray for you  and your family and have His mercy and grace to protect you,to guide you and help you and your family during this time of sorrow.
I am so sorry.
May the Grace of God be with you and your family.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

5 (edited by Nancy246 Sun, 15 Jul 2012 13:01:35)

Re: My Husband Lost His Battle

Dear Peggy, It is with sorrow that I read your post. John and yourself put up a tremendous fight and he surely beat the odds with living 4 years. I am also so sorry to hear that John did not leave peacefully. I hope you can find some peace knowing that he is no longer suffering. Your right, he will be in your heart forever! Much love sent to you and your children. I wish I could ease your pain. Hugs. Nancy

Loving my husband from afar.

Re: My Husband Lost His Battle

Peggy, I am very sorry to hear about John. You have been so strong throughout his 4 year fight. I wish you continued strength during this difficult time. My heart goes out to you and your family.

Hugs
Eli

Re: My Husband Lost His Battle

Dear Peggy,

I am so very sorry to hear of  John's passing. He gave such a valiant fight against this horrible disease. I pray you find peace in knowing he is now at peace. I am sorry you have bad memories about hospice and I hope those diminish and are replaced by all the wonderful times you had with John. Take care and God bless.

Love, -Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: My Husband Lost His Battle

Dear Peggy, I am so sorry to hear of the loss of your husband, John.  Much peace in the upcoming days.  Pam.

Re: My Husband Lost His Battle

Peggy;

I am very sorry that John has passed.  Both of you were so strong.  It was terrible that you had a bad experience at the end with hospice. I hope they learn something to apply in the future.   My thoughts and prayers are with you.

Re: My Husband Lost His Battle

Dear Peggy

I'm so very sorry to hear John has died. My thoughts are with you and your family and I sincerely hope the memory of your bad experience is soon diminished by the much happier memories you have of John. It broke my heart to see my lovely sister in such terrible distress a few days before she died, but I was "lucky" in that she slipped into unconsciousness and passed away gently.

I still have flashes of those really painful memories, but happier ones are starting to push their way through now.

My love to you and your family
Julia

“When it is dark enough, you can see the stars." - Ralph Waldo Emerson

Re: My Husband Lost His Battle

Dear Peggy,

I am so very sorry indeed to hear of the passing of your John.  Please accept my sincere condolences and know that my thoughts are with you and your family right now.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: My Husband Lost His Battle

I'm so sorry for your loss. My condolences to you and yours. Prayers going out to you.
Teresa

Re: My Husband Lost His Battle

Thanks everyone for your kind words and condolences.  John will be greatly missed.  I will try to post web site where his obit can be read.  I had requested donations be made to the Cholangiocarcinoma Foundation.

http://www.coffmanfuneralhome.net/sitem … ffenberger


If this works, thanks Eli.

Re: My Husband Lost His Battle

Peggy, what a handsome man and so kind looking as well. Thank you so very much for requesting the CC Foundation as your choice for Donations. Thinking of you and sending a ton of hugs to you!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: My Husband Lost His Battle

Peggy just read about your John, I'm am praying for you to find peace and a sense of comfort. Honor his memory by being strong and living your life knowing that he is at peace.

Re: My Husband Lost His Battle

Deara Peggy,

I am so sorry to hear that John has passed and that you had such a bad experience in the end.  My story was much the same as your's although my husband passed only two months after his first symptoms.  John put up a good fight.  Try to remember the good and let go of the bad.  Take comfort in the fact that he no longer is suffering and is at peace.  He will always be with you in your heart an memories.  You have my deepest sympathy and understanding.

Lots of Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.