Re: My new road: radiation?

Oh, Susie: What a bad decision. I saw The Bucket List when it came out and was so excited it was on right after my surgery. I watched about 30 minutes of it and was crying like a baby asking my then boyfriend who's stupid idea it was to see a movie about cancer?? Of course he said it was mine.....
I stay far away from them now. I heard it was a funny take, but cancer movies hit too close to home!
Huggs,

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: My new road: radiation?

Kris, the mold is soooo uncomfortable but the breath hold machine with nose clip is a little scary. Ok, take a deep breath and hold it...you don't have to hold it because the machine does it for you...no air.....I'm glad I'm not cloister phobic!
I have a little pain at the radiation spot as well but I just pray that means its working. You will be done soon...yippppeeeee
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: My new road: radiation?

You, too, Lisa!! We're gonna be done about the same time. And it WILL work for both of us!! I figure the pain means it's working....
7 weeks from now I get a CT scan and find out WHEN my resection is. Not IF, but WHEN!!! Let's get this cheerleading section going.
And you are going to get fabulous news, too. You're one step up on me: you already know it this worked for you and it's gonna work again.
Huggs,

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: My new road: radiation?

Treatment #3 done. Machine kept breaking down. They were only about 15 minutes behind tho. Unfortunately, the machine went down twice while I was on the table. The first time I didn't move. The second time I said I HAD to move or I was gonna start screaming. And I only had 2 more angles left. I asked if we could just ditch them after about 20 minutes and they said no. Oh, well, I tried. Got off the table and expected to meet with Dr. Meyer. Nope. Again cancelled. I will go into his office on Wed. if he doesn't meet with me then. I'm getting tired of being pushed off. Today he was behind in clinical, so I figured his office might be full... so I didn't push too hard. But I will! I have a loud mouth and I don't mind using it when I feel I'm being taken advantage of.
Having some pain in the abdominal area. Hoping it means the lymph nodes are shrinking....

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: My new road: radiation?

Hey, loud mouth, we need people like you! Yea on only 2 to go! Dr., Meyer doesn't know who he is messing with! Can't wait for the next installment.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: My new road: radiation?

Treatment #4 done. Met with doc yesterday. Asked him if the very specific area where I was getting the intermittent pain was where the lymph nodes are and he said yes. So I asked if I could be feeling the rad working on it and he said yes. I figure I'm feeling them respond to radiation and when I get the scan in 7 weeks it will show SHRINKAGE!!! That's my story and I'm sticking to it.
He said it takes several weeks for the swelling to go down until they can actually see how the treatment went. Right now everything is swollen and irritated.
Treatment (LAST ONE) is Friday.
Sept. 4 is my CT  scan. Sept. 5 is meeting with Dr. Kemeny about results. Later that week/early next week is meeting with Dr. Meyer about results. And I KNOW that I will have to meet with Dr. Fong soon after, too, to discuss the next steps. I'm having very very few side effects from the radiation so I'm thinking it's all being kept inside and gets to work better!
I call myself the cheerleader. I spend lots of time cheerleading for others: now it's time to cheerlead for ME!

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: My new road: radiation?

Kris,

I will join your cheerleading squad. Go Kris, Go Kris, Go Go Go Kris!!
YAYYYYYYYYYYY Kris!!!! I am glad everything is going well and hoping for big shrinkage in those lymph nodes!!!

Love, -Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: My new road: radiation?

Go team Kris!!! Just a word of caution radiation is accumlative and usually extreme tiredness sets in at end, I have posted this and also Derin and Patty!! Be prepared to rest and miss  a little karoake and poker, but as you just posted "this to shall pass"! Keep all your positive thoughts because those and prayer are what make the best cancer fighters!!
Lots of prayers-Cathy

Re: My new road: radiation?

Kris...the cheerleading team is right behind you.  You go, girl.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: My new road: radiation?

Go Kris!!! Great news and heck yes it sure is time to cheeerlead for you!!!  I'll go get changed into my cheerleaders outfit!!

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: My new road: radiation?

Kris,

Glad to hear it is going well.  I'm sure they talked to you about this but make sure you take care of your skin.  I was told to use aquaphor.
I did not get  a radiation burn, but my skin got  a little tan.  I used the cream everyday after treatment.  How is your throat feeling?
Hang in there, you will be done before you know it.

Marion, 50/50 is a movie about a young man in his 20's getting cancer and how he deals with it.  It is sad, but with some funny parts.

Take care everyone!

Susie

Re: My new road: radiation?

yay Kris!!

Re: My new road: radiation?

Kris,
One more to go...go Kris...go Kris !!!!!!!  At my six week scan the results were still not clear because the tumors were still there but several months later they were gone..........I am praying yours are gone and you can have surgery...how exciting!!!

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: My new road: radiation?

Thanks, Susie.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: My new road: radiation?

I wish you all the best! You're so brave and fiesty. I've had to push to get answers We needed. Keep pushing! !! Much love and support to you Kris!
Teresa

Re: My new road: radiation?

I've learned if I want answers I need to ask and keep pushing. I am my own advocate. And I don't like answers that don't well me anything. I like things explained to me. And i will call the office again and again until I get a clear to me answer. And if they talk over my head, I ask them to rephrase it until I understand. My onc is famous for non-answers. I end up having to reach one of her staff to get clear answers because Dr. Kemeny is so hard to get hold of...
Today is the 5th and FINAL radiation treatment. I am so happy to be almost done. And except for some tiredness and blood counts a little low, I have no side effects. Skin looks good. They told me what to look for and to make sure I don't expose it to sunlight without protection. I showed her my SCAR on my abdomen and said "Do you really think this will ever see the light of day again?" HAH! I don't THINK so.
And Gavin: That's a sight I want to see!! Or don't I??? You in a cheerleading outfit!! smile
Thanks for all the support everyone!

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: My new road: radiation?

Kris...we are done today with radiation today....we did it ! Now e prayers that the tumors are gone. Xxoooo

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: My new road: radiation?

Kris...you did it.  Will you be up for a motorcycle run with Karen? 
Gavin, your cheerleading outfit is a Kilt, right?
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: My new road: radiation?

Yep, radiation is done. I'm going for a m/c ride tomorrow morning I think. It's HOT and HUMID here today, with thunderstorms....
Lisa: You BET we got this!!! I'm praying no outside effects means lots of inside work getting done. I pray that we both get great news within the next couple of months!!
Hugs to all!

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: My new road: radiation?

Yea!!!!  Rest up and let that radiation work its' magic.  Maybe a little singing...
Be good to yourself Kris.  Celebrate the small, wonderful gifts around us everyday.

Wishing all God's blessings!

Re: My new road: radiation?

Amen to the tiredness, but since I finished up in June, all good now! I also had it every day 5 days a week with oral Xeloda too for a total of 5 weeks.  first 3 weeks I continued to work out, but the last 2 and about 2 weeks afterwards I just listened to my body because it was tired! This is the first week I've hit the gym with weights 2x, last week only 1 time, but I've been running (ok, jogging) 3-4 days a week getting ready for my tough mudder deal in December.

Kris, a question: you mentioned different angles, did they shoot the radiation, stop, reposition the machine, shoot again? I had a continuous burst for about 2 minutes where the machine did a 360 degree revolution, pause, then another 2 minute burst with 360 degree rotaton, and that was it. Poor man's CT at the initial part of  each visit to line me up, but overall I was in and out in roughly 10-15 minutes... Just curious. Anyway, glad you're done, let's hope for some good results on the next scan!

Derin

Husband to Eileen, Dad to Hunter (16) and Sydney (14)
Attitude is everything, you have to keep it positive! And take it one day at a time, it's all anyone can do with this disease...

Re: My new road: radiation?

Derin:
I had stereotactic. I got the "poor man's" (I like that) scan to make sure I was lined up, then the machine did little movements and then 30-40 second bursts. Then movement, then 30-40 second burst. About 10-15 times. Took about 20 min. total when the machine wasn't acting up.
I was just a little tired. Not too bad. I have a few "twinges" in my abdomen and stool issues, but I'm figuring the twinges mean the radiation worked!!!!!
It hasn't stopped my poker or karaoke, but it did make me cut down on the motorcycle a little, which I had already done... but I get my scooter back today so I can ride again!! Look out world!
BTW, my saying is now that I'm not gonna stop 'cause I don't want "it" catching me!! smile

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: My new road: radiation?

Yeah, Kris, music to my ears. Ride that Scooter like you are traveling forever! Enjoy, I am so happy for you!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.