Topic: My mom has been newly diagnosed with CC :' (
Hello everyone! I must first say thank you to everyone for their posts to the website. I spend a lot of time looking over the different discussions, questions and answers and can't get enough to try to help my mom. To start, my beautiful mommy is 69, will turn 70 on Aug 24th. She had her gallbladder removed in Aug 2011, had been having horrible abd pain, and at that time we were told she had Gallbladder cancer from the biopsy. Her ONC then referred her to University Hospital in San Antonio where she received a partial liver resection where the gallbladder sat (gallbladder fossa), to ensure that the cancer was completely gone. The biopsy results from that were negative-whew and Thank God!! She had been fine since then, no pain, good appetite. But then, on a visit to her ONC in June, noticed that she had dropped 5lbs, which she attributed to just not being very hungry...which we thought may have been normal since she had a recent endoscopy (which came back negative), thus made her lose her appetite for a bit. Then the week after July 4th, she developed a rash, which spread all over her body, her urine became dark, and finally had to be admitted to ER from abdominal pain and turning jaundiced. That's when we were told that her main bile duct was dialated and the biopsy came back as cancer. We were in shock, disbelief, needless to say the emotional rollercoaster we were on last year returned. How could this happen...again??? Since then, she has had a metal stent placed which helped her jaundice, she still has some abdominal pain, but the pain pills she's been given help with that thus far. Her NEW ONC (we will not be returning to her previous for personal reasons) suggests pallative chemo, since she is Stage IV, would be given Cisplatin/Gemzar. The cancer appears to be inside the main bile duct, no spread to her liver or kidneys, but unfortunately the last CT Chest/Abd/Pel from University in July showed nodules in her chest, which they think may be mets but they are too small to biopsy at this time. I'm so scared for my mom, we all are..she's never undergone chemo and she herself is nervous (with good reason). I've read over and over about this type of chemo combo, some good, some bad, but any information you can provide would be very much appreciated. Is there anyone out there that has been in this same situation with their CC, or perhaps similar, and is still here, alive and well? We don't want to lose our angel..we have been changing her diet, as well, but since she doesn't have an appetite most days, find that if she gets an appetite for something it is better than nothing at all. The oncologist says that if she does the chemo might give her 1-2 years, but if not, then possibly a year or less....my heart is breaking just writing this, but my family and I will do what we need to in order to help her be strong. Thank you again....to everyone on this site and fighting this horrible cancer...my thoughts and prayers are with you too!