• From: Alabama
  • Registered: Thu, 15 Dec 2011
  • Posts: 365

Topic: Surprised!

So I went to my website for MDA, and all my appts for the pre y90 stuff where gone!
I emailed dr. Javle and he said he was worried about the side effects from y90, and we will talk in person next week.
I'm confused. I thought y90 was good for cc patients, and didn't have a lot of side effects? Maybe this means he thinks I might get to have surgery or transplant??

~Tiffany~ 31 years young wink Fighting CC since 10-27-2011
Wife to Brian; Mommy to Carter (7) and Madison (4)
http://tiffanyschwantes.wordpress.com/
I balance my life with my breath.

tiff1496's Website

  • Registered: Mon, 27 Jun 2011
  • Posts: 435

Re: Surprised!

Tiffany,

I have no idea why he would cancel it but it sounds like you'll find out soon.  Keep us posted.

Susie

  • Lainy
  • Lainy
  • Moderator
  • Offline
  • From: Phoenix AZ
  • Registered: Fri, 13 Jan 2006
  • Posts: 8,219

Re: Surprised!

Tiff, looks like once again the one thing we can count on with CC is surprises. Anxious to see what the good Doctor has in mind!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • From: Alabama
  • Registered: Thu, 15 Dec 2011
  • Posts: 365

Re: Surprised!

Me to Lainy.
I wonder what side effects he is talking about? Maybe there is something better out there for me. That is what I'm hoping. I just have to remember he is a good doctor, and knows what is best for me, but the wait sure is hard.

~Tiffany~ 31 years young wink Fighting CC since 10-27-2011
Wife to Brian; Mommy to Carter (7) and Madison (4)
http://tiffanyschwantes.wordpress.com/
I balance my life with my breath.

tiff1496's Website

  • Lainy
  • Lainy
  • Moderator
  • Offline
  • From: Phoenix AZ
  • Registered: Fri, 13 Jan 2006
  • Posts: 8,219

Re: Surprised!

Tiff, I totally understand. Patience is not a virture of mine on a good day! I like things done yesterday. Guess that is why I am not a Doctor, I have NO patients (patience)! Hang in, be strong we are all rooting for you!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.
  • From: Alabama
  • Registered: Thu, 15 Dec 2011
  • Posts: 365

Re: Surprised!

Thanks for always being there for me. I will update when I know something ! I just have a feeling he has something good in store for us.

~Tiffany~ 31 years young wink Fighting CC since 10-27-2011
Wife to Brian; Mommy to Carter (7) and Madison (4)
http://tiffanyschwantes.wordpress.com/
I balance my life with my breath.

tiff1496's Website