This is a great post. I hope a lot of people respond. My daughter, Lauren, is the one with CC. She has had 21 or 22 chemo treatments so far. It's hard to remember. She was diagnosed around a year ago and started out with Gemzar, Cisplatin, and 5-FU. The 5-FU was in a pump that she wore for 48 hours. She had good tumor shrinkage after the first two scans. The only side effects she had were being tired and achy for a few days and her platelets would drop a lot from the Cisplatin. After about six months, her oncologist dropped the Cisplatin to give her kidneys a rest. She continued with the Gemzar and 5-FU until she had Theraspheres in May. We did not get the good news we had hoped from that procedure. The scan said her tumors on the side she had done had grown and there was a new 5cm. tumor. We find it hard to believe that a 5cm. tumor could just pop up and Lauren and I both wonder if it is a dead spot from the Theraspheres. She was then put on Oxaliplatin and Xeloda. She has had 2 rounds of that and will have one more and a scan to see if it has helped. She has been way more tired on this chemo regimen and sleeps a lot. I hope I have given you the info you wanted and wish you and your Mom all the best.
My beautiful daughter, Lauren Patrice, will live on in my heart forever.
My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.