My mom (age 54) has started the Folfirinox trial at University of Chicago this summer. I don't believe we have had any problems with our insurance (BCBS). She has just received her 4th treatment and we will be doing our first scans on Monday. Mom had to get the port, which was a quick procedure- but she still does not like it at all. The first treatment was the absolute worst, but the ones after have been pretty good. After reading on here and elsewhere about people's reactions, I have seen that everybody is different. Her main side effects are tiredness, mouth sores (make sure to get a prescription rinse to prevent and help when they pop up), leg cramps and her hair has started thinning some. Many people have severe diarrhea, luckily she pops an Immodium on the first episode and it subsides quickly. She had missed a couple treatment days due to low white blood cell count and last week she had developed a rare infection from the biliary tree, so she was hospitalized for a bit to make sure things were ok. Some advice I can offer, the doc had prescribed anti-nausea meds on days 1-3 of chemo (until the 5FU pump was disconnected) but we found taking the Zofran and other meds through day 5 was much better for her (I think that is what made the 1st treatment so crappy!). She has been eating great and her energy level is through the roof- she takes her pump and goes on her daily power walks nearly every day. She's a total warrior!
I wish you all the best and pray things go well for you.