• Gavin
  • Gavin
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Topic: Good news for patients? The National Cancer Patient Experience Survey

From Cancer Research in the UK -

Good news for patients? The National Cancer Patient Experience Survey

http://scienceblog.cancerresearchuk.org … +Update%29

"In the latest survey results, covering 2010/11, one in five – 20 per cent – of cancer patients surveyed said they were involved in a research study, the highest proportion in the world. Of these, nearly two thirds – 61 per cent, or 32,000 – are enrolled into a Cancer Research UK-supported study, and these studies have changed clinical practice in many areas."

  • Gavin
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Re: Good news for patients? The National Cancer Patient Experience Survey

http://www.dh.gov.uk/health/2012/08/can … ce-survey/

https://www.wp.dh.gov.uk/publications/f … 011-12.pdf

  • Registered: Fri, 12 May 2006
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Re: Good news for patients? The National Cancer Patient Experience Survey

Gavin....Thanks for posting this. I wanted to make a few points in re: to clinical trials conducted in the US and in the UK. 
The UK is quite successful because: it is a smaller country allowing for easy patient access to the multitude of participating centers.  This accounts for a relatively quick accrual.  Additionally UK patients don't have to bear any cost associated with trial participation.   
Hugs,
Marion

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  • eli
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Re: Good news for patients? The National Cancer Patient Experience Survey

Marion, I recall reading about another key factor that intensified cancer research in the UK.

They established a *single* administrative authority that manages all clinical trials across the country. The trials are no longer tied to one hospital or a group of hospitals in one region. Instead, a trial can be spread across the entire country. This administrative change sped up patient enrollment in the trials.

If I remember correctly, this is a relatively recent development.

  • Registered: Fri, 12 May 2006
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Re: Good news for patients? The National Cancer Patient Experience Survey

eli....thanks for pointing this out.   How are things handled in Canada?  Is it a cross between the US and UK?

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  • eli
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Re: Good news for patients? The National Cancer Patient Experience Survey

Marion, it's complicated!!

This site shows all cancer trials across Canada:

http://www.canadiancancertrials.ca/

I see different kinds of trials:

* provincial trials done at one hospital
* provincial trials done at multiple hospitals within a province
* national trials done at multiple hospitals across multiple provinces

My wife and I live in Ontario. We are covered by Ontario Health Insurance Plan. We can get treatment at any hospital in Ontario, no questions asked. It would be fairly easy for us to join any trial within the province (travel notwithstanding).

Joining a trial outside the province is more problematic. I assume that our provincial insurance will refuse to cover the costs. I know for sure that US trials are not covered.

  • Registered: Fri, 12 May 2006
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Re: Good news for patients? The National Cancer Patient Experience Survey

Thanks much, Eli.  Participating in a clinical trial within your province then is cost free to all Canadian patients.  Thanks again for sharing this information with us.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER
  • Gavin
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Re: Good news for patients? The National Cancer Patient Experience Survey

Thanks for pointing that out for everyone Marion and you are right in everything that you say. And I never knew that patients in the US had to pay to partake in clinical trials either. And Eli you are also correct in that a specific trial can be conducted across many hospitals throughout the whole of the UK. And yes, patients here don't pay to enter trials either, but then we don't pay like you all do through insurance for our healthcare either under the NHS.

Thanks to you both,

Gavin

  • Gavin
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Re: Good news for patients? The National Cancer Patient Experience Survey

Clinical Trial info in the UK from cancer Research -

http://cancerhelp.cancerresearchuk.org/trials/

  • Gavin
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Re: Good news for patients? The National Cancer Patient Experience Survey

Clinical trials organisations -

http://cancerhelp.cancerresearchuk.org/ … nisations/

  • Gavin
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Re: Good news for patients? The National Cancer Patient Experience Survey

Q and A page about trials, drugs etc. Not all is relevant for us but some of the links in this link have good info, especially for UK members.

http://cancerhelp.cancerresearchuk.org/ … setValue=0